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Lincolnshire Parent Carer Forum
Lincolnshire Parent Carer Forum
admin@lincspcf.org.uk Tel 07925 232466  LPCF, PO Box 1183, Spalding, PE11 9EE
Registered Charity No. 1141060 * ICO Registration Z1810966

Resources PDF Files and Weblinks

ESSENTIAL INFO LINKS - Local Offer SEND Inspections Code of Practice 2015 Inclusion Toolkit EBSA

Aspens
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ABC Worksheets
Parent usable worksheet to help record and identify aspects of behaviours by identifying Setting / Date / Time then (A) Antecedent (B) Behaviour (C) Consequence
Beacon House - Resources
A web site / page recommended by Chris form Aspens. Huge amount of material to check through and read. Far too much to be summarised here !
Blank anxiety scale worksheet Jan 2023.

Practical approaches to working with Children who demonstrate PDA Characteristics (Updated 01 2022)
Useful crib sheet for parents
Promoting positive behaviour- PPT Slides (Updated 10 2023)
A copy of 42 slides used during presentation by Chris from Aspens.
Really good reminder of the workshop learning and practice.

/ www.aspens.org.uk
Bishop Grosseteste University
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Using Everyday Music Activities to Support Communication (New 01 2023)
A series of 36 slides used in the BGU presentation.
(NB a couple of slides are missing which were video of music and communication however these cannot be stored in PDF format. Links to videos are however listed for reference)

/ enquiries@bishopg.ac.uk www.bishopg.ac.uk/opendays
Carers First
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Lincolnshire Carers Service Benefits Offer
Benefits - Carers Allowance, Carers Credit, Attendance Allowance, Personal Independence Payment, Disability Living Allowance, Universal Credit, Pension Credit, Employment and Support Allowance, Council Tax Support and Discounts, Fringe Benefits
Personal Independence Payment (PIP) Overview
How PIP works
WoS 22 - Contact - Money Matters (New 01 2022)
A comprehensive guide to benefits / grants / allowances etc from Contact. In essence for a family with SEND Children - "What benefits could I be entitled to"
/ 01522 782224 www.carersfirst.org.uk/lincolnshire
Children's Continence Service
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Toilet Skills Mar 2023
20 Slide presentation from LCC continence team.

Lots of links and resources pointers at the end - so much material to follow up !

Toilet Skills Presentation (2024)
A presentation on understanding Toilet skill development and to implement a staged approach to it.
/ BS_HealthServices@lincolnshire.gov.uk 01522 843000.
Children's Hearing Services Working Group (CHSWG)
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Childrens Hearing Services Working Group - [chizzywigs] (Updated 01 2023)
An brief outline of chizzywig for those who associated with deaf and hearing issues. (Inc contact details)

Lucy Holton / Lucy.Holton@mail.com 07725 131495
Choices College (16+ College)
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A4 Learner Booklet 24
Choices College is a specialist College providing tailored educational support, and a supported internship course for young adults aged 16-24 with learning disabilities/ difficulties and/ or Autism.
Case Studies
Case studies of young people who have found work or internships via Project Choice
Choices college outline
Outline framework of how Choices college works in supporting youngsters seeking employment etc
Video introduction
This year Project are launching work experience and supported internships within the NHS (or outside) for 16-24s with disabilities who have an EHCP. Work experience would be during the summer term for 6 weeks and internships launch in September and last a year. This is a video link to tell you a little about us - please also see our flyers.
Work Experience Booklet 24

/ Project.Choice@hee.nhs.uk www.hee.nhs.uk/our-work/project-choice-supported-internships
Community Dental Services
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A Parents Guide to oral health and dental care for children with SEND
Useful web based PDF resource by Contact and National Deaf Children's Society which is promoted to parents by the Community Dental Services .
Special Care Dental Service (CDS) Jan 2023
Understand importance of oral care, techniques for assisting others
with oral care and how to try and overcome barriers you may face

Video - Dental visit for Youngster with LD
Dentists using Makaton to support a youngster through dental appointment / visit.
Week of SEND - Apple Fresh Toothpaste

Week of SEND - CDS Oral Health Training Slides (Updated 01 2022)
Supporting slideshow presented by the CDS team.
/ ohimp.lincolnshire@cds-cic.nhs.uk www.communitydentalservices.co.uk
Designability-Wizzybug – FREE powered mobility for under 5’s.
Down Syndrome support group
Dyslexia Sparks
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Dyslexia Sparks handout 24

Samantha / office@dyslexia-sparks.org.uk www.dyslexia-sparks.org.uk
Early Years Alliance - Best Start Service
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Personal Development - Grow Your Own Confidence (New 01 2022)
A training opportunity for Parents
Personal Development - Opening Doors to Employment (New 01 2022)
Virtual course for parents
/ lincolnshire@eyalliance.org.uk
ERIC
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Continence / Containment Products for Children (New 01 2022))
A comprehensive guide to all things Bowel and Bladder. Written by Bladder and Bowel UK
Talking Wee and Poo (New 01 2022)
Healthy Bowels and Bladders for children with additional needs.
Toilet Training Children (New 01 2022)
A Skill Development Programme written by Bladder and Bowel UK.
Toilet Training Children with ASD (New 01 2022)

/ sarah@eric.org.uk 0117 301 2101 www.eric.org.uk/
Everyone
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Short Breaks Caravans

/ hello@every-one.org.uk /caravans@every-one.org.uk 01522 811582 07741572197 every-one.org.uk/
Family Fund
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Simple outline leaflet from Family Fund

/ 01904 550055 www.familyfund.org.uk
Hartsholme Cricket Club
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Publicity Leaflet - Info
We are now a Disability Champion Cricket Club
Ian Dovey, Coach and Youth Develop Manager / iandovey@yahoo.co.uk 07966 061540 www.hartsholmecricketclub.co.uk
Healthy Minds
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Anxiety - Presentation Slides (Updated 01 2022)
Supporting Children and young people with their worries. Understanding Anxiety, Worry and Fear in children
Sophie / 0303 123 4000 0800 234 6342 www.lpft.nhs.uk/young-people/
Holiday Activities and Food Programme (HAF)
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Easter 2024

/ HAF@lincolnshire.gov.uk
Home from Home Care
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Publicity brochure
Includes list of Residential homes, services and how the organisation works in detail
/ getintouch@homefromhomecare.com 0800 587 0372 www.homefromhomecare.com
Inclusion 21
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Introductory Flyer
A brief outline of what Inclusion 21 offer including activities listing.
Megan / Paul megan@inclusion21.co.uk: Paul@inclusion21.co.uk 07469 828584 www.inclusion21.co.uk/
Jan Hargrave (Specialist)
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Week of SEND - Sex and Relationships - Presentation slides

/
Kids
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Family Support Online leaflet 24

KIDS - Early Support & Learning Provision timetable (New 01 2022)

KIDS - STRUT Timetable (New 012022)

KIDS - Targeted Positive Activities Timetable (New 01 2022)

Kids Holiday Home: Cotswolds 24

Kids Young people's Hub 24

/ Kids.lincolnshire@kids.org.uk 01522 542937 www.kids.org.uk
Kooth
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Discover Kooth (New 01 2022)
An outline of Kooth - who are Kooth, how do they work, what do they do .....
Kooth - an Explanatory video

Kooth Infographic (New 01 2022)
One page poster of essential Top tips on how to talk to your children about their feelings.
Kooth Parent Carer Brochure (New 01 2022)
A handy guide for Parents an Carers
Kooth WoS ~Slides Jan 2023
The Kooth slideshow used during Week of SEND 2023
Covers just about everything that needs to be known about this teen focussed Mental Health Support Group

Mini Activity Kit
A list of small activities and ideas from Kooth which can help in supporting mental health. eg managing emotions or building helpful habits
Parents FAQ sheet - (New 01 2022)

Returning to School After Lockdown- Kooth’s Tips and Advice for students

/ parentsandcarers@kooth.com www.kooth.com
KYRA (Mobilise)
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Childrens Learning at Home and Avoiding Homework Battles Jan 23
Slideshow presented by KYRA at WoS 23.
Includes some great tips and tricks plus resources pointers for parents.

/ enquiries@kyra.anthemtrust.uk 01522 287020 kyrateachingschool.com/
LCC Children with Disabilities Social Work Team
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Social Care Support

Week of SEND - CWD Vision Document
PUTTING CHILDREN FIRST - Meeting the Needs of Children and Families in Lincolnshire

/ 01522 782111 www.lincolnshire.gov.uk/send-local-offer/children-disabilities
LCC Children's Health
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Bowel and Bladder UK - Resources for Children

ERIC - Children's Bowel and Bladder Charity

ERIC - Guide for children with additional needs
Clear guide to toileting issues for Children with SEND Tips, tricks and planning
Fluids Advice
Quick crib sheet about fluids needs / consumption for children
Managing Bladder and Bowel Issues in Nurseries, Schools and Colleges
Guidance for school leaders, proprietors, governors, staff and practitioners. What parents may experience in various settings.
Safe Sleep
2-minute Briefing for safe sleep information and advice to give to families.
/ bs_healthservices@lincolnshire.gov.uk 01522 843000 www.lincolnshire.gov.uk/health-wellbeing/health-visitors
LCC Dyslexia Outreach
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British Dyslexia Association website
All manner of information and useful material on the BDA website. Starting with - How can I support my child? page NB also covers Dyscalculia
Dyscalculia or Maths Learning Difficulties? (Jan 2023)
Lots of background to different issues relating to the subject with a list of useful website / resources links at the end.
How To Explain Dyslexia To Your Child (Jan 2023)
Link to Nessy website for parents
Supporting your child at home (Jan 2023)
Slideshow provided at WoS 23
Covering - what is Dyslexia?, developing knowledge and vocabulary, support in reading and pointers to resources.

Week of SEND - Dyslexia Mind Map for Parents

Week of SEND - Presentation slides - Understanding dyslexia

Word Exploration sheet (New 01 2022)
A simple sheet which can be used to explore new words with a child.
Odette Read: North / Helen Lane: South odette.read@lincolnshire.gov.uk : helen.lane@lincolnshire.gov.uk 07778 534478 (Odette) 07823 535473 (Helen)
LCC Early Years & ChildCare Support
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Early Years - Love of books – reading with Toddlers (Video)

Early Years - Love of Books - reading with pre-schoolers (Video)

Early Years - Love of books – reading with baby (Video)

Sensory food education
Government page on the subject with lots of links focussing on Early Years. Material written by TasteEd so look up their webpage for more info and links to info and resources including a simple Parents Workbook
/ 01522 552752
LCC ESCO
LCC Local Offer
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Week of SEND - Presentation slides Jan 22

Week of SEND Slides Jan 23
Lincolnshire's Local offer
What is it? What can parents use it for.

/ lincolnshire.gov.uk/special-educational-needs-disabilities
LCC SEND Employment Project (Employers forum)
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Avoiding the cliff edge (New 01 2022)
Work Preparation - Preparing young people with SEND for employment
LCC SEND Employment Project Jan 23
Purpose of the Vocational Profile
Project Choice Jan 23
Placement Provider
Case studies of Young People within Project Choice

Project Choice Jan 23
Placement provider leaflet
Information for students, parents and carers

SEND Employment Jan 23
A shared vision to best prepare young people with SEND for key transition points - Employment
Week of SEND 21 - Presentation Slides

Young Person Case studies 24

Scott / scott.eley@lincolnshire.gov.uk 07557 214082
LCC SEND team
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0-16 Social Communication Pathway Jan 23
Overview of the pathway (including Autism assessment and diagnosis)
Graphical outline, Where to go, What happens, Support etc

Co-producing SEND Transformation in Lincolnshire
Lincolnshire Parent Carer Forum AGM 24th June 2021
Emotional Based School Avoidance (2024)
From the SEND Transformation workshop.Full workshop to follow.
Learning and Support at Home 2021
RECOMMENDED
Lincolnshire Councils SEND Advice Line Service have worked with recommendations from educational psychologists to bring together this resource to share with parents to help signpost to available support for children with SEND
during home-learning

Personal Budgets (New 01 2022)
A basic outline of PBs
SEND Inclusion and Transition Jan 2023
Large Slide set covering lots of subjects from LCC inc
> Inclusion - SEMH Strategy
> Inclusion Support
> SEND Local Offer
> SEND Advice Line - Lincolnshire (SALL)
> What is valuing SEND? (VSEND)
> The Pupil Reintegration Team
> Emotional Based School Avoidance (EBSA)
> Behavioural outreach Service (BOSS)
> Working together Team (WTT)
> Building Communities of Specialist Provision + more

The Graduated Approach (2024)
Powerpoint explains what the Graduated approach including Reasonable adjustments
Transformation highlights
Special thanks go to members of the High Needs Partnership, Lincolnshire Parent Carer Forum and Lincs Young Voices for helping drive forward the High Needs Strategy.

Transformation in SEND Workshop (2024)
Details of the work surrounding the "Building Communities of Specialist Support" project.(£100m investment in SEND in Lincs)
Also includes details of the Local Offer.

Week of SEND - Valuing SEND Toolkit Leaflet
In partnership with Impower, LCC & LPCF.
Week of SEND 21 - SEND Transformation in Lincolnshire

Week of SEND 22 - SEND Transformation in Lincolnshire (New 01 2022)
An background and update on the progress of the 5 year, £86m investment in improving SEND
/ 01522 782030
LCC Sensory Education and Support Team
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New SEST Information Powerppoint

/ Karen.Donnelly@lincolnshire.gov.uk. 01522 554211
LCC Specialist Teaching Team - ECLIPS speech and language specialist teachers plus Dyslexia Outreach specialist teachers
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Dyslexia Outreach Service 24

Makaton (supporting language learning)
(Updated 01 2022)


Study Skills - Getting Ready to Revise

Study Skills - Getting Ready to Revise Example

Study Skills - Key Exam Words

Study Skills - Thinking Maps Oct 2023

Study Skills and Revision Strategy

Thinking Maps - Detailed maps and explanations (NB 7mb) Oct 2023
A Common Visual Language for Learning
Typical Talk in Primary (New 01 2022)
Poster describing the stages of typical language development in Primary
Typical Talk in Secondary (New 01 2022)
Poster describing the stages of typical language development in Secondary
Visualisation ideas Oct 2023

Week of SEND - Dyslexia Explained
Dyslexia Explained: Without the Need for Too Many Words Paperback available via Amazon.
Designed for parents and teachers to read with children to help them understand dyslexia, its different types, signs, symptoms, strengths and weaknesses.
Week of SEND - Paired Reading
A tool/process which can be used professionals and parents to support child's abilities.
Week of SEND 21 - Slides - DLD
What is Developmental Language Disorder
Week of SEND 21 - Slides SLCN + DLD
Introduction to SLCN and Developmental Language Disorder
Week of SEND 22 - Slides SLCN + DLD (Revised 01 2022)
A new and revised set of slides - Introduction to SLCN and Developmental Language Disorder
/ STTenquiries@lincolnshire.gov.uk 01522 553265
LCC Transitions
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Annual Review Yr 9 (New 01 2022)
A helpful booklet identifying Key topics to cover at annual reviews from year 9 as the Transition process to 16+ education begins.
Moving on - Brief Outline of Transition (New 01 2022)
An Accessible Guide to Transition
Moving On and Preparing for Adulthood
Full book - 70 pages of guidance and information
Moving to Adult Services: What to Expect (8Mb)
Comprehensive document covering almost everything one needs to know about transitioning to Adult Services. A must read for those to prepare and plan a better transition.
Planning for Adulthood Jan 23
An outline of the pathway to plan for adulthood from Early years to Post 16 and options.
Preparing for Adulthood (New 01 2022)
A reminder of the vision for Preparing for
Adulthood.
Developing Outcomes.

Tomorrows Leaders - A world beyond Disability (New 01 2022)
A series of uplifting case histories of young people with Disabilities who have achieved well.
Transition Checklist 2
Getting the most out of your transition to adulthood.
Helpful and simple checklist for those transitioning to adult life.

Weblinks - Transitions (New (01 2022))
Useful list of organisations and resources for SEND Parents and Carers.
Elita Cozens / Elita.Cozens@lincolnshire.gov.uk
LCC Young Carers Service
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Information Sheet
Information about how the service can support children and young people up to the age of 18 who help to care for someone at home.
Week of SEND - Example Young Carers Card

Young carers postcard
Information (postcard size)
Young carers poster
Hands up who cares?
Poster for displaying in schools or for promoting the service.

Sally / youngcarers@lincolnshire.gov.uk 01522 553275
Liaise
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Education, Health and Care Needs assessment (EHCNA) for children in early years settings or at school

Education, Health and Care Plans (EHC / EHCP)

Funding for special educational needs in mainstream schools

Liaise and SEN Support Jan 2023
Comprehensive details about SEN support in education (other than EHCPs) - often called SEN support or Graduated Approach (GA).
Lots of info to read through from slides provided.

Meetings in School

SEN support in mainstream schools

Week of SEND - EHP Plans (Workshop Slides)

Week of SEND 22 - SEN and EHC slides (New 01 2022)
Just about all the key details a parent carer needs to know.
A must read if your child is receiving SEN support or needs an EHC.

Week of SEND 22 - SEN Support in Schools (Workshop Slides) (Updated 01 2022)
An updated slide set.
What if I do not agree with decisions about SEN provision?

What is SEN Support?
Special video from Liaise on SEN support. See link
/ liaise@lincolnshire.gov.uk. 0800 195 1635 lincolnshire.fsd.org.uk/kb5/lincs/fsd/family.page?familychannel=2_1_11
LiNCHigher
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Week of SEND 21 - Who are LiNCHigher? - Presentation Slides

/ linchigher.co.uk linchigher@bishopg.ac.uk
Lincolnshire County Council Short Breaks
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Short Breaks Caravans 24

The Thomas Centre 24

/ Shortbreaks@lincolnshire.gov.uk 01522 553536. www.lincolnshire.gov.uk/schools-education/short-breaks
Lincolnshire Fire and Rescue
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Home Safety Checklist
A very useful checklist for parents and families - DOs and DON'Ts
/ 01476 565441 lincolnshire.gov.org/lfr
Lincolnshire Parent Carer Forum
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Cerebra Internet Safety
A very comprehensive PDF covering internet safety for children with SEND.
Well worth reading as it covers almost everything one can even think of relating to internet safety.

LPCF Brochure
A basic 4 page flyer about LPCF (includes registration form but best done online)
What makes a good transition?
LPCF Parents guide.
/ admin@lincspcf.org.uk 07925 232466 www.lincspcf.org.uk
Lincolnshire Partnership NHS Foundation Trust (LPFT) - Children and Young people(CYP)Services
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#GettingThrough the first few days document

CAMHS Family Survival Guide CAMHS Family Survival Guide

Carer and Relative Support
From LPCF's Week of SEND 2024
Child and Adolescent Mental Health Service (CAMHS)
Self help material from the LPCF Week of SEND 2024
CYP Health Strategy for Lincolnshire 2019-2025 - Jan 2023
Ambitions for Asthma, Epilepsy and Diabetes
Healthy Minds 2023
Supporting Children and Young People with their worries
How can I help my child
Self help material from the LPCF Week of SEND 2024
Self help and emotional wellbeing advice
Self help material from the LPCF Week of SEND 2024
Self-referral
Self help material from LPCF Week of SEND 2024
The role of family ambassadors

Transforming Care LPFT Services Jan 2023
What is the Transforming Care Agenda?
/ 0800 234 6342 www.lpft.nhs.uk/young-people/lincolnshire/home
Lincolnshire Wolds Community Trust - The Avenue
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The Avenue Slide Presentation (Updated 01 2022)

The Avenue Parent Leaflet (2021)

The Avenue Young Person Leaflet (Updated 01 2022)

/ marketing@lwf.lincs.sch.uk www.lwctrust.co.uk/
Lincolnshire Young Voices
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LYV Flyer

LYV Outline - slides Jan 23
Outline of who LYC are and how they make sure that the voices of SEN young people are represented by SEND young people directly to LCC and Health
LYV Terms of Reference 24

LYV Terms of Reference Widgets 24

Tomorrows Leaders - a World Beyond Disability (8Mb)
An insight into what some young people with SEND have achieved as they get older.
Stories of their life and achievements in all aspects of life.
Feel free to share and inspire parents and young people that their future can be bright.

Week of SEND 21 - Presentation slides
Inspiring Change! - Together our voices make a difference
/ LincolnshireYoungVoices@lincolnshire.gov.uk www.lincolnshire.gov.uk/youngvoices
Linkage Community Trust
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FREE to loan Sensory items from the Linkage library.
Email sensory.library@linkage.org.uk
Tel 01790 752499
You can borrow up to 5 items at a time for up to 6 weeks.
They even offer a drop off service !!!

Linkage Sensory Library Flyer
Outreach project
Delivering sensory support to people with SEND and Learning Disabilities across Lincolnshire.

/ transition@linkage.org.uk 01472 372310/372303 www.linkage.org.uk
National Deaf Children's Society (NDCS)
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NCDS Slides WoS Jan 23
Outline of NCDS
"the leading charity for deaf children. We’re here for every deaf child who needs us – no matter what their level or type of deafness or how they communicate"

/ ndcs@ndcs.org.uk 0808 800 8880 www.ndcs.org.uk
NHS - Specialist Nurse for Children and Young People with Autism/suspected Autism
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Service Overview + Contact
Details of what the service offers and contact details etc
/ SpecNurseCYPAutism@ulh.nhs.uk 01522 309679
NHS Lincolnshire Community Health Services NHS Trust's Children's Therapy Services
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1st Move - A gross and fine motor skills resource

Chidrens Respiratory Service - YT Video (New 01 2022)

Infant Pilates - YT Video (New 01 2022)

Postural Care Training - YT Video (New 01 2022)

Sensory Living Skills (OT) (New 01 2022)
Practical support for your child’s daily living skills from
Children’s Occupational Therapy Service

/ www.lincolnshirechildrenstherapyservices.nhs.uk/
NHS Lincolnshire ICB
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The role of the Designated Clinical Officer (DCO)
"To ensure coordinated and integrated services that reflect the
voice of children and young people, the DCO service improves
communication and links between health, education and social
care professionals"

Open PDF to read more

Week of SEND 2022 - Sensory Processing Project Slides

/ 01522 513355 ext. 5461
Penderels Trust
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Links for various videos Jan 24
Series of links to Pendrels videos
> Who Are We?
> What is a Direct Payment and how do I get one?
> A Guide to Recruiting a Personal Assistant
> A Guide to Employers' Liability Insurance
> A Guide to Managed Accounts Financial Money Management Services

Tammy Priestley / lincolnshire@penderelstrust.org.uk 01526 833803 www.penderelstrust.org.uk
Roald Dahl Transition Nurse Specialist: Complex Healthcare Needs & Disabilities
Organisation Logo
Transition Moving to Adult Services Jan 2023
Roald Dahl Transition Nurse Specialist: Complex Healthcare Needs &
Disabilities,
Who are Roald Dahl Nurse Specialists ?
Who do they work with?

Lucy Williamson / Lucy.Williamson@ULH.nhs.uk 01205 445702 07849833264
SNAP
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SNAP Leaflet
New leaflet Sept 23
Widget Leaflet (New 01 2022)

/ snap@alivechurch.org.uk 07900 635 366
Special Olympics Lincolnshire
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Details of groups 24

Special Olympics Presentation Jan 23
Special Olympics Lincolnshire is part of the countries largest provider of year -round sports training and competition programme for people with learning disabilities.
Read more ....

Angy Morley / 07759597977
The Challenging Behaviour Foundation
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Family Support Services Flyer

/ support@thecbf.org.uk 01634 838739 www.challengingbehaviour.org.uk
The Lincolnshire Carers Service
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Carer Friendly Employment Booklet 24

Lincolnshire Carers Service leaflet 24

Lincolnshire Carers Service Postcard 24

Lincolnshire Carers Service Poster 24

/ CarersService@lincolnshire.gov.uk. 01522 782224 www.lincolnshire.gov.uk/xfp/form/785
The Nystagmus Network
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Parents Presentation 24

/ info@nystagmusnet.org 01427 718093 www.nystagmusnetwork.org
The Sleep Charity
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Week of SEND - Presentation slides

Claire / claire@thesleepcharity.org.uk 07568 052300 www.thesleepcharity.org.uk
The Working Together Team (WTT)
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Training for parents around ND / Autism
Please have a read of the WTT offer of training for parents. A number of LPCF parents have provided positive feedback.
Update of WTT Jan 23
WTT have changed from Sept 22.
Read all about how the service looks and operates now.
Who are WWT?, What do they do?, referral process, Workshops for parents

WTT Presentation Slides (New 02 2024)
Who are WWT?, What do they do?, referral process
/ www.wtt.org.uk
Virtual Autism Hub
Wills Providence
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Resource File / Links
Wills and Trusts Slides (01 2022)
A brief outline of essential information for parent carers to safeguard the future of their children.
Paul Belliere-Wilson / info@willsprovidence.co.uk 07920 043106 willsprovidence.co.uk/about/