Facebook Logo Link Easyfundraising Logo link
Lincolnshire Parent Carer Forum
Lincolnshire Parent Carer Forum
admin@lincspcf.org.uk LPCF, PO Box 1183, Spalding, PE11 9EE
Registered Charity No. 1141060 * ICO Registration Z1810966

Signposting and Information Events Listing


A(4)B(3)C(11)D(4)E(3)F(3)G(1)H(9)I(2)K(1)L(32)N(6)P(6)R(1)S(7)T(7)V(3) ALL
The Challenging Behaviour Foundation   
Organisation Logo Provide information and support to parents and carers of individuals with severe learning disabilities whose behaviour challenges.

They have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from the office or downloaded from the website.
Support is provided through email for parents and professionals, and telephone or email support for families.

Their vision is for anyone with severe learning disabilities whose behaviour challenges to have the same life opportunities as everyone else. They work to improve understanding of challenging behaviour, empower families with information and support, and help others to provide better services and more opportunities.

See 1 item(s) in LPCF Resources Library


  Email:- support@thecbf.org.uk   Tel:- 01634 838739   Web:- www.challengingbehaviour.org.uk
The Electronic Assistive Technology Service (EATS),NHS Lincolnshire Community Health Services NHS Trust    
Organisation Logo The Electronic Assistive Technology Service (EATS) provides assessments and equipment for people with complex communication needs across the East Midlands.

Within Lincolnshire they also carry out assessments and provide equipment for environmental control needs.

Referrals for Alternative & Augmentative Communication (AAC) are received from the local Speech & Language Therapy (SLT) Service and, following a joint assessment they advise regarding next steps and provide equipment and training as appropriate.

The services are commissioned by NHS England and have clear referral criteria.

The Lincolnshire Carers Service    
Organisation Logo The Lincolnshire Carers Service is delivered in partnership by Lincolnshire County Council's Customer Service Centre and Carers First.

You can contact the Lincolnshire Carers Service to talk to someone about your caring role and they will listen and provide you with support. The Customer Service Centre is the first point of contact for all general enquiries regarding support for carers. You can contact the Customer Service Centre from 8am to 6pm, Monday to Friday, except on public holidays.

The Lincolnshire Carers Service can help you with:
  • information, advice, and guidance specific to you as a carer
  • the opportunity to talk in detail about your caring role (a carer’s assessment)
  • support your conversations with people and services such as GPs, social care and hospitals
  • practical training to help you in your caring role
  • eligibility for benefits and financial support
  • opportunities to access support groups and activities so you can meet others in a similar situation to yourself
  • regular contact by telephone, Carers First website, monthly e-bulletins and “What’s On” guides containing details of groups supported by Carers First
  • Carer's Emergency Response Plan, which is a plan that you are supported to create and which provides detailed instructions for others to follow in an emergency situation
  • getting the balance right in your life again
  • support to access a break or help around the home, depending on eligibility this may be funded through a carer's personal budget.

See 6 item(s) in LPCF Resources Library


  Email:- CarersService@lincolnshire.gov.uk.   Tel:- 01522 782224   Web:- www.lincolnshire.gov.uk/xfp/form/785
The Nursing team   
Organisation Logo The nursing team at St Francis Special School, employed by United Lincolnshire Hospitals NHS Trust support the health needs of the many children and young people who have complex and other health needs during the school day.

The nurses oversee the administration of medication, provide advice on fluctuating health needs over the school day, advise school staff and parents/carers where a child/young person becomes unwell during the school day and manage any unplanned/emergency situations such as prolonged seizures or respiratory concerns

The team liaise with other health professionals such as the Long Term Ventilation Nurses and Physiotherapists from regional specialist hospitals, the local Rapid Response Respiratory Physiotherapists as well as supporting face to face clinics with Community Paediatricians, Dieticians and the Children and Young Peoples Nurses who hold continence clinics at school.

  Email:- admin@st-francis.lincs.sch.uk   Tel:- 01522 526498
The Nystagmus Network   
Organisation Logo They provide support and information for parents and carers of children and young people living with the eye condition nystagmus.
They also deliver awareness raising training for teachers and support staff and hold regional in person and online meet ups, workshops and training sessions for families.
Visit the website to download digital guides to nystagmus and the early years, education, benefits, registration, employment, driving and much more.
They also have a Facebook page.

See 2 item(s) in LPCF Resources Library


  Email:- info@nystagmusnet.org   Tel:- 01427 718093   Web:- www.nystagmusnetwork.org
The Working Together Team (WTT)   
Organisation Logo The Working Together Team is a National Autistic Society Advanced Status Accredited Service, commissioned by Lincolnshire County Council to empower mainstream settings and their communities. They advocate best practice and provide specialist support to upskill staff and empower settings to ensure autistic children & young people/those with social communication differences thrive through collaborative working with families and professionals.

Team members are skilled practitioners with specialist training and day-to-day hands on experience. In addition to staff and parent/carer training workshops, WTT can support settings to develop their autism inclusive practice, identifying the strengths and needs of their pupils and working with staff and families in school to tailor approaches considering reasonable adjustments and programmes of specific intervention, where appropriate.
Further information about school engagement with WTT and downloadable resources for settings, families and the CYP can be found on their website

See 4 item(s) in LPCF Resources Library


  Web:- www.wtt.org.uk
Tourettes Action    
Organisation Logo Tourettes Action is the UK’s only national charity dedicated to supporting individuals with Tourette syndrome and their families.
Staff, volunteers and supporters are engaged and energised in driving forward their mission.
Everything they do is grounded in their community’s needs and informed by both the voices of their community and research-based evidence.

See 1 item(s) in LPCF Resources Library


  Contact(s):- Ione Georgakis /   Email:- help@tourettes-action.org.uk   Web:- www.tourettes-action.org.uk