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Lincolnshire Parent Carer Forum
Lincolnshire Parent Carer Forum
admin@lincspcf.org.uk LPCF, PO Box 1183, Spalding, PE11 9EE
Registered Charity No. 1141060 * ICO Registration Z1810966

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Action Duchenne    
Organisation Logo Action Duchenne has a very clear vision: a world where lives are no longer limited by Duchenne Muscular Dystrophy (DMD).
They have three core objectives and are proud that they spend 88.7p in every £1 raised on charitable activities (support, research and education)
  • Developing effective treatments for all by funding research, supporting clinical trials and campaigning for access.
  • Building a community by uniting and supporting families, educating about Duchenne and raising the profile of the condition.
  • Striving for a more inclusive society promoting the importance of human equality, day to day acceptance of disability and accessibility.
    While they hope that research and clinical trials will one day lead to a treatment, or a cure for Duchenne, they believe it is vital to support families living with the condition today. They support families from diagnosis through their whole Duchenne journey.
    They unite and support families, educating about Duchenne and raising the profile of the condition.
    Their International Conference each November brings together Duchenne families, clinicians, therapists, researchers, pharmaceutical companies and, most importantly, those living with Duchenne muscular dystrophy from across the globe.

    Their engaging ‘Science on Tour’ programmes are free workshops that run across the UK. The aim is to help you make informed decisions, understand more about the scientific research of Duchenne and get up to date information about treatment options.

      Contact(s):- Kelly Molkenthin /   Email:- info@actionduchenne.org   Web:- www.actionduchenne.org/
  • ADHD Lincs   
    Organisation Logo ADHD Lincs is a registered charity which provides support and information to families and individuals who are living with Attention Deficit Hyperactivity Disorder (ADHD) and associated learning differences.
    They are committed to raising awareness of ADHD and educating the public and professionals about the impact of ADHD on the individual, home life and society.

    Their ultimate goal is to enable people with ADHD to realise their full potential. They have built an excellent reputation since 1996, providing training and support to the ADHD community.
      Web:- adhdlincs.org/
    Andy's man club    
    Organisation Logo ANDYSMANCLUB are a men’s suicide prevention charity, offering free-to-attend peer-to-peer support groups across the United Kingdom and online. They want to end the stigma surrounding men’s mental health and help men through the power of conversation. #ITSOKAYTOTALK

    See 1 item(s) in LPCF Resources Library


      Web:- andysmanclub.co.uk/
    Aspens   
    Organisation Logo Aspens are based in West Sussex and have provided "Behaviour Workshops" for Lincs PCF aimed at helping parents improve Knowledge, Skill sand resilience in dealing with various behaviours as below.

    Positive Behaviour Support
    As a member of the British Institute of Learning Disabilities (BILD), Aspens believes that to improve the quality of life, independence and autonomy of the people we support, Positive Behaviour Support (PBS) must be a cornerstone of our ethos and values.

    Positive Behaviour Support is a multi-component framework for understanding and supporting people who display behaviours of concern. By understanding the context in which these behaviours occur we can implement proactive, evidence-based strategies to enhance all areas of an individual's life.

    (NB Aspens are lot local and do not provide support services in Lincolnshire)

    See 7 item(s) in LPCF Resources Library


      Web:- www.aspens.org.uk