Signposting and Information Events Listing

Action Duchenne has a very clear vision: a world where lives are no longer limited by Duchenne Muscular Dystrophy (DMD).
They have three core objectives and are proud that they spend 88.7p in every £1 raised on charitable activities (support, research and education)

Developing effective treatments for all by funding research, supporting clinical trials and campaigning for access.

Building a community by uniting and supporting families, educating about Duchenne and raising the profile of the condition.

Striving for a more inclusive society promoting the importance of human equality, day to day acceptance of disability and accessibility.
While they hope that research and clinical trials will one day lead to a treatment, or a cure for Duchenne, they believe it is vital to support families living with the condition today. They support families from diagnosis through their whole Duchenne journey.
They unite and support families, educating about Duchenne and raising the profile of the condition.
Their International Conference each November brings together Duchenne families, clinicians, therapists, researchers, pharmaceutical companies and, most importantly, those living with Duchenne muscular dystrophy from across the globe.

Their engaging ‘Science on Tour’ programmes are free workshops that run across the UK. The aim is to help you make informed decisions, understand more about the scientific research of Duchenne and get up to date information about treatment options.

  Contact(s):- Kelly Molkenthin /   Email:- info@actionduchenne.org   Web:- www.actionduchenne.org/

ADHD Lincs is a registered charity which provides support and information to families and individuals who are living with Attention Deficit Hyperactivity Disorder (ADHD) and associated learning differences.
They are committed to raising awareness of ADHD and educating the public and professionals about the impact of ADHD on the individual, home life and society.

Their ultimate goal is to enable people with ADHD to realise their full potential. They have built an excellent reputation since 1996, providing training and support to the ADHD community.

ANDYSMANCLUB are a men’s suicide prevention charity, offering free-to-attend peer-to-peer support groups across the United Kingdom and online. They want to end the stigma surrounding men’s mental health and help men through the power of conversation. #ITSOKAYTOTALK

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Aspens are based in West Sussex and have provided "Behaviour Workshops" for Lincs PCF aimed at helping parents improve Knowledge, Skill sand resilience in dealing with various behaviours as below.

Positive Behaviour Support
As a member of the British Institute of Learning Disabilities (BILD), Aspens believes that to improve the quality of life, independence and autonomy of the people we support, Positive Behaviour Support (PBS) must be a cornerstone of our ethos and values.

Positive Behaviour Support is a multi-component framework for understanding and supporting people who display behaviours of concern. By understanding the context in which these behaviours occur we can implement proactive, evidence-based strategies to enhance all areas of an individual's life.

(NB Aspens are lot local and do not provide support services in Lincolnshire)

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Believe Sport are specialists with conducting sport sessions for children and adults with special educational needs and disabilities.
The Believe Sport team offers many support services, from weekly clubs around the Lincolnshire area to one to one session and Afterschool club sessions.
In addition to sport sessions Believe Sport offers special services. They are the first coaching company to offer Social emotional & Mental health sport therapy. This service is to support children with SEM and offer key development and support for safeguarding and behavioural concerns.

They have over 5 years experience within their team ensuring that childrens needs are met to guarantee the childrens enjoyment. All children with disabilities ranging from Autism, MLD, ADHD to physical impairment are welcome.

Swimming lessons for disabled adults and children.
At Better, they believe everyone should enjoy the benefits of swimming, regardless of their access or support needs. That's why they provide SEND (Special Educational Needs and Disabilities) swimming lessons for both adults and children at many of their pools and leisure centres.

The swimming lessons for disabled adults and children range from personalised 1:1 sessions for those who require extra assistance to group classes designed for swimmers with more confidence. No matter your ability, they have the right class to help you or your loved ones build swimming skills in a safe, supportive environment.

Bridge House Independent School is a SEMH setting, with three schools based in Boston: the Grantham Road Campus, Carlton Road Campus and Great Fen Road Campus.

They pride themselves in supporting Key Stage 2, 3, 4 and 5 (7-18 years) pupils who disengage from education or (for whatever reason) find themselves outside of mainstream school.

They share the Government’s commitment in helping children achieve more and are fully committed to Safeguarding.

Changing Places toilets are different to standard disabled toilets with extra features and more space to meet additional needs. Each Changing Places toilet provides:

A height adjustable adult-sized changing bench (wall-mounted or free-standing)

A tracking hoist system

Adequate space in the changing area for the disabled person and up to two carers (Minimum of 3m x 4m/ 12m2 in new builds and 3m x 3m/9m2 in existing buildings)

Centrally placed toilet with room either side for carers
Changing Places toilets have sufficient space for the disabled person and their carer thus allowing carers themselves to use the toilet, something which they cannot do in a standard disabled toilets.

  Email:- K.Hoe@musculardystrophyuk.org.   Tel:- 07701373565

In Lincolnshire they provide a range of services to help children, young people and their families with their emotional wellbeing and mental health. To ensure that young people and their families get the right support at the right time, by the right team, all routine referrals are triaged and/or screened by practitioners in our Children and Young People Access Team.

The Children's Continence Service provides services to children across Lincolnshire (with a Lincolnshire GP). They see children with day time wetting from age 3 to 19 years, Nocturnal enuresis from age 5 to 19 years, and constipation and soiling from 0 to 19 years.

Children will be offered tier one support for constipation, daytime wetting, developing toilet skills and night time wetting by the Health Visitors or the Children and Young Peoples Nurses depending on their age. If Tier 1 staff assesses a need for tier 2 they will then conduct that referral.

For more details on the tiers of support please contact the team.

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Improving services for deaf children and young people in Lincolnshire.
Children's Hearing Services Working Groups (CHSWGs) "chizzywigs" bring together people from different services who support deaf children and young people and their families.

These include audiologists, teachers, speech and language therapists, social workers, local charities and representatives from the National Deaf Children's Society.

They aim to make sure that different services work well together and provide the best possible support for deaf children and young people, and their families. CHSWGs operate across England, Scotland and Wales, and there's one in Lincolnshire

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Lincolnshire County Council works closely with NHS Lincolnshire Integrated Care Board (ICB) and on behalf of them has taken on the lead commissioning responsibility for children and young people's mental health services. More recently this has also been expanded to cover aspects of commissioning related to services for children and young people (CYP) with learning disabilities (LD) or autistic children and young people.
As Commissioning Manager for this area of work, Kevin Johnson and his team oversee the reviewing, procurement/contracting, and contract management of a number of emotional wellbeing and mental health support services for CYP, including:
• Kooth Online Counselling Service
• Healthy Minds Lincolnshire
• Mental Health Support Teams
• Child and Adolescent Mental Health Services (CAMHS) • including the CAMHS LD team, CYP Eating Disorder Service, Crisis and Enhanced Treatment Team and CYP Complex Needs Team.
More recently the team are also involved in supporting:
• The development of the CYP Keyworking Service – providing advocacy and support to CYP who are autistic and their families who are at high risk of admission to hospital because of their mental health
• Review and improvement of the CYP autism diagnostic pathway as part of a piece of work led by Lincolnshire Autism Partnership Board looking at the all-age autism diagnostic pathway
• Development of pre- and post-diagnostic autism support for CYP, adults and older adults as part of a piece of work led by Lincolnshire Autism Partnership Board.

Childrens Links provides a range of services to support families for inclusion.

They have a fantastic toy library in Lincoln with a range of specialist sensory toys available to hire and an inclusive play area.

Also they offer support to parents/carers to help them back into work, have a ranging of training programmes, inclusive nurseries and they operate a voluntary sector forum to support those in the sector to support local families.

Who we are:
Choices college is a Specialist Post-16 College providing a person-centred, individually tailored Supported Internship to young adults with learning difficulties, disabilities and/or Autism. Through the Internship, 16-24 yearolds gain work experience, develop independence skills and increase their employability.

What we do:
Our service is bespoke, offering tailored support to each Intern, and employment opportunities are matched to the individual's skills.Choices college aims to empower Interns and build their confidence as individuals in the workplace, while also offering life experience beyond their home and school environments.

The programme aims to provide young people with the skills and opportunities to enable them to progress into paid employment at the end of the yearlong internship programme, working within a wide range of public, private and independent sector departments/ areas.

As well as supported internships, we offer work experience to those 16 and above with an EHCP. Please ask your school to contact us about this.

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Community Dental Services in Lincolnshire is a specialist dental provider for residents within the County (excluding North and North East Lincolnshire) with significant medical, physical or mental health disabilities, or people with severe dental anxiety. We are a referral only service, and our acceptance criteria and referral form can be found on our website.

They pride themselves on providing high quality care and treatment for children and adults whose dental care cannot be managed by a General Dental Practitioner. They accept referrals from all healthcare providers, however any referrals for dental anxiety reasons must come from a Dentist.

The Oral Health Improvement Team are part of the service co-ordinating, facilitating and supporting a range of evidence-based interventions to reduce oral health inequalities and promote better oral health.

Oral health is everyone's responsibility; therefore, training is available to health and non- health professionals.

Sessions are tailored to meet the requirements of specific teams e.g. health visiting, teachers and many voluntary sector areas.

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County Care is widely regarded as one of the most respected, innovative providers of support for people with learning disabilities, autism and mental health throughout Lincolnshire , Surrey, and West Sussex.

They are committed to providing high quality, person centred services which promote the independence, choice and inclusion of the people they support.

They have an excellent track record for the delivery of services which are truly personalised.
The services provided are

Day Services Monday-Friday 9am-4pm at their centres in Holbeach and Skegness

Registered with the Care Quality Commission

Support in the community for Children and Younger Adults
Head Office is situated in Skegness.

Following on from the isolation that Covid caused Curo -lincs decided to launch a new service offering mental health support with a difference. They provide support either one to one or within small groups, horticulture, nature crafts and animal assisted therapy. Utilising nature in a variety of ways to encourage people to interact and build confidence. People are naturally multi facetted so why not offer multi facetted ways to engage and support them? .

The animals are a natural therapy. They have trained therapy dogs but also use their free range farm animals. Clients will learn about them and how to care for them, using a trust technique to develop a unique bond with the animal. This promotes a structure that promotes self worth, empowerment and achievement. It's imperative that both animals and people are not ‘forced’ into engaging.
The Paws-itivity dog cafes run a similar structure enabling people to attend without pressure to talk to them, people can talk to our dogs whilst building confidence to interact with the group. Normally with a piece of cake and coffee.
They also offer nature craft groups, where people can chat and do their own or one of their crafts. These are inspired by nature and so far they have done heartfelt hens, positive painted rocks, Boston pompom birds, gonks and needlecrafts.

Their projects are predominantly facilitated by volunteer peer mentors who use their farms to provide health, social and wellbeing services for vulnerable people including: adults & children with disabilities, mental health issues and those experiencing isolation;

Activities may vary depending on the person/groups attending and the time of year, but the following are some examples of things they do:

• Mindfulness, Arts, Crafts and photography for wellbeing
• Horticultural activities such as: planting wildflower areas, planting and maintaining orchards, gardening, growing vegetables, building edible gardens. Hedge laying. Pond dipping, harvest the vegetables,
• Learn about the animals, including feeding, cleaning and providing enrichment.
• Build an enrichment activity for the animals such as hurdles, ramps, beds.
• Groom the pigs and goats, Dust chickens for mites, Clip goats’ hooves, Collect the eggs
• Take the goats for a walk.
Group activities such as: men’s group, women’s group, dog cafes, coffee mornings. Come along to one of the community social groups where they bring one of their dogs and you are welcome to bring.

Introducing Wizzybug!
Wizzybug is a fun, innovative powered wheelchair provided FREE of charge to young children in the UK by Designability a charity based in Bath.

Who is Wizzybug designed for? Wizzybug is designed for physically disabled children. This includes children living with cerebral palsy, spinal muscular atrophy, spina bifida or muscular dystrophy, as well as children with amputations or other conditions that affect their ability to walk.
Wizzybug is intended for pre-school children of minimum age 14 months and a maximum weight of 20 kg.

How can Wizzybug be used?Wizzybug is an electrically powered wheelchair for indoor and outdoor use, with adult supervision. Children use Wizzybugs at home and at pre-school, and in outdoor spaces such as parks, gardens and playgrounds.
Wizzybug can be used every day or just occasionally, but is not intended to be used all day, every day. Through the loan scheme a child can have a Wizzybug for as long as it is suitable for them (usually until they outgrow it) when it is returned to Designability to be refurbished ready for another child to enjoy.
How can I apply? Families can apply for a Wizzybug direct via the application on the website. Appointments are held at our HQ in Bath, and at our partner clinic at William Merritt Centre, Leeds.
Our clinics are open Monday – Friday 9-5pm. They have disabled parking, disabled access and baby changing facilities. All our trained OTs have enhanced DBS clearance and our admin and support staff have basic DBS clearance.

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A Lincoln, quality- based day care service for 18 year olds and over, with modern facilities set in a safe and peaceful environment within our own ground. Using qualified and highly experienced care professionals with proven ability and reputation to deliver a wide range of inspiring indoor and outdoor activities.

Specialising in providing a tailored and individual care service forcusing on personal abilities, choice, independence and life skills.

Open daily and alternate Friday evenings. Short term support throughout the summer holidays if required.

Children’s Therapy wanted to extend the early intervention provision for children with Down’s Syndrome. Through co-production, a monthly group for babies and children aged 6 months to 4 years & their families was created.

Initially, Children’s Therapy liaised with the Lincolnshire Down’s Syndrome Support Group (LDSSG) and its members to create several focus groups. Feedback from this process supported the design of the groups to suit the families.

The groups, based in Children’s Centres for a more relaxed feel, allow families to meet with representatives from the three therapies (Speech and Language Therapy, Occupational Therapy and Physiotherapy) each month.
Their child’s development and next steps to work on are discussed. Changes have been made along the way in response to additional feedback from the current attendees. The groups have given the parents/carers confidence in supporting their child and have allowed for peer support as well as guidance from professionals. Each month, an early year’s theme is used to introduce children and parents to a range of information including: evidence-based research and programmes to support children with Down Syndrome, vocabulary and Makaton signs, exercises to support fine and gross motor skills.

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Dyslexia Sparks was founded in August 2016, with a mission to support dyslexic individuals across the Hull and East Yorkshire region, born out of a passion for helping people reach their potential and find their inner SPARK. It’s a charity which is built on many years’ experience of understanding the barriers dyslexic individuals face, and a desire to ensure they can overcome these challenges.

Dyslexia Sparks provides diagnostic dyslexia assessments to children and adults aged 7+. They also provide specialist tuition support at their centre in Hessle, East Yorkshire.

Dyslexia Sparks works closely with schools to advise them on how to best support dyslexic learners, as well as providing dyslexia assessments to inform specific adjustments or additional support. Sparks also offer teacher training - a helpful step for many schools to ensure their staff can recognise and understand dyslexic learners and enable them within the classroom.

The monthly online support offers specialist topics each month for parents and teachers to gain ideas about how to best support dyslexic children. During the year they run additional free events to offer further support.

Visit the website, Facebook page, or Eventbrite, to find out more about the events happening right now.

If you would like to talk about any of the services, or get some friendly advice from one of the specialists, please get in touch.

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A leading early years charity delivering the Best Start: Early Years & Family Service across the 48 Children's Centres of Lincolnshire and outreach venues.

Offering Early Years support for families; supporting the understanding of children's learning and development and offering high quality Early Years sessions for families in Children’s Centres and at local outreach venues.”

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ERIC is dedicated to helping all children and teenagers manage and overcome distressing continence conditions.
Whether it is a toilet-training issue, bedwetting, constipation or soiling problem, ERIC provides expert support, information and understanding to children and young people and enables parents, carers and professionals to help them establish good bowel and bladder health.
ERIC’s family support includes a free helpline, parent and family workshops, online resources and information services
• A free telephone and email helpline
• Clinically correct information and digital resources on potty training, bowel problems, daytime bladder problems and bedwetting
• Training courses for health and education professionals
• Support and information events for parents and carers
• An online shop supplying a range of continence products for children
• Campaigns to raise awareness and to improve support available to children in education settings and the NHS.

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Every-One were originally commissioned by Lincolnshire County Council through the Lincolnshire Health and Wellbeing Board to develop and establish a Carers Quality Standards Award. Continuation of funding through Lincolnshire County Councils Better Care Fund has enabled the work to develop and the award has become a recognised symbol of quality.

The Carers Charter Quality Award You Care We Care ensures that the profile of unpaid carers in Lincolnshire is raised and the invaluable and essential contribution they make is recognised, enabling carers to live fulfilling lives combined with their caring roles.

Undertaking the Lincolnshire Carers Quality Award to achieve the recognised quality award You Care We Care is a positive experience and strengthens organisational effectiveness and achieves recognition for the valuable way an organisation supports those carers with whom it works. It ensures the continuing development of quality approaches for those with caring responsibilities across Lincolnshire and beyond.

The Lincolnshire Carers Quality Award is going from strength to strength and numerous, wide and varied organisations are working towards accreditation and the request for and submission of applications grows weekly.
Lincolnshire Parent Carer Forum has received the Carers Quality award.

Every-One is also providing short-break holidays for families living in Lincolnshire, with children/adult children who have a physical disability, sensory impairment, autism, or similar condition which demonstrates challenging behaviour.

The caravans are located at Butlin’s in Skegness and are available between March and November each year. Holidays are only available to families living in Lincolnshire and are subsidised by Lincolnshire County Council, making them more affordable for families needing a short break. Everyone deserves a break!

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Family Fund is the UK's largest grant-making charity for families raising a disabled or seriously ill child or young person, on a low income. Their grants bring practical and essential help that is often a lifeline to a family such as washing machines, fridges, bedding, specialist toys and much needed family breaks.
They also offer free digital skills support to families living in the UK who are raising a disabled child. This includes online skills workshops for parents, creative workshops for children, eLearning courses to help check benefits, save on household bills, and more.

They are a registered charity and the UK's largest provider of grants to families living on low incomes who are raising disabled or seriously ill children.

To find out more or to apply for a grant see contact details:-

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Lincolnshire County Council was selected as one of 75 local authorities to benefit from funding for the Government’s Family Hub programme. This programme aims to create a positive impact for families across the county by providing access to high quality, joined up services from pregnancy, early years, through to children aged 19 (or 25 for those with disabilities or special educational needs).
10 of the 48 Children’s Centres in Lincolnshire are also designated as Family Hubs. Offering support to all Lincolnshire families which includes children from 0-19 (or up to 25 for those with special educational needs and disabilities)

Family network support packages (FNSP) may be able to help support children when there is a barrier to a family network member (this could be a relative, family friend, neighbour etc) providing support to the child/ children. The support required must be identified as part of ongoing work either in team around the child, child in need or child protection planning.
All it takes is an application from the lead professional- one page application, a costing sheet, providing the FNSP team with an early help assessment and evidence that a family network meeting has taken place within the last 4 weeks.
The eligibility criteria is as follows:
• The child has a suitable Family Network as identified and recorded in the 'Family and Friends (Networks)' section of the Early Help Assessment form/ Child and Family Assessment, within a Family Network Meeting, or through Family Group Conferencing.
• The child must have an allocated lead professional at the point of application, and whilst funding remains in place
• The child is ordinarily resident in Lincolnshire.
• There is a barrier to the Family Network stepping in and providing support that could not otherwise be resolved without financial and/ or practical help from the Local Authority.
• The birth parents have parental responsibility for the child.
• None of the following apply: Special Guardianship Order, Child Arrangement Order or Private Fostering Arrangement
• The funding is not used to directly fund something that alternative programmes are designed to address such as half-term activities, access to funded nursery hours, support with debt or school meals.
• The funding directly enables the Family Network to overcome financial and practical barriers to providing support.
• A Family Network Meeting/ Family Group Conference has taken place and there is a clear, agreed family-led plan.
Direct cash payments will not be paid directly to parents unless that directly unlocks support from Family Networks.
• The application form, cost sheet and referral information can all be found on the LSCP website.
• We are also offering a 1:1 triage with an FNSP professional who can provide tailored support to help the lead professional complete the application and ensure it matches the eligibility criteria- just email FNSPApplications@lincolnshire.gov.uk and request your slot (usually each Tuesday between 1 and 2pm, but this can be tailored to your availability).
Once the application has been approved at our week

Day Activities and training for Adults with Disabilities.

Are a cricket club in the south of Lincoln offering competitive, social and junior cricket for anyone from 5 years of age upwards who wishes to join the club.

They accept people from anywhere but predominantly members are from the Birchwood, Hartsholme and Boultham areas of Lincoln and postcode LN6 area.

Last season they had 60+ male and female adults and 150+ under 18s (including exactly 50 girls) playing at the club, outdoors in the Summer and indoors in the Winter.

They think everyone should get the chance to play cricket and recently they were awarded the status of "Disability Champion Cricket Club" one of three in Lincolnshire.

So far they have run a programme for 5 to 11 year olds which now also runs 9 to 30 January and in the New Year start "Super Ones" for 12 - 25 year old though they can be flexible about the upper age limit.

We’re starting softball cricket for Primary school age SEN children - boys and girls on Thursdays 5.30pm - 6.30pm.

Starting 10 October 2024 and it’s at the Moorland Community Centre, Moorland Avenue, Lincoln LN6 7NH.

It’s free of charge and we hope to go right through to the end of March 2025 with a break around Christmas and the New Year.

Get back to me if your youngster can attend or if you have any questions.

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Healthwatch Lincolnshire is an Independent Champion for patients with any concerns relating to Health or Social Care.

All comments; positive or negative are collated and sent to the providers (no patient details are included.)

They also offer a signposting service should you not be aware of what to do, or where to go.

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Healthy Minds Lincolnshire is an emotional wellbeing service which provide evidence based workshops, groups and one-to-one sessions, working with children and young people aged 0-19 (25 if SEND or Leaving Care).

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Hil is a successful Master Practitioner and Coach in Neuro Linguistic Programming (NLP), with a Masters Degree in Leadership.

She loves working with a wide range of individuals facing significant, personal challenge as well as groups of varying sizes across business and education.

Hil offers a fresh perspective, bold problem-solving and unorthodox strategies. Her main strengths lie in her ability to connect with people;motivating and developing them to think actively, flexibly and creatively. She relishes new challenges and is committed to adding value to, and facilitating the growth of individuals and teams.

She is currently the trainer for LPCF's parents workshops - "Juggling the Joys of parenting" and "Life Hacks for coping wiith change".

The Holiday Activities and Food programme (HAF) is a Government funded programme that provides free holiday clubs for reception to year 11 pupils in receipt of benefits-related free school meals in Lincolnshire over the summer, Christmas and Easter holidays.

The HAF programme is designed to ensure a high-quality experience for children that will result in receiving healthy and nutritious meals and maintaining a healthy level of physical activity. Children who attend HAF develop a greater understanding of food, nutrition and other health-related issues and have the opportunity to take part in fun and engaging activities.
Children and young people attending a HAF club will also have the opportunity to have fun, meet new friends, socialise, learn new skills, encounter new experiences and gain confidence whilst enjoying happy, healthy holidays.

There are many benefits for children who attend the HAF programme. A high-quality experience that provides children with:
• receiving healthy and nutritious meals
• maintaining a healthy level of physical activity
• being happy, having fun and meeting new friends
• developing a greater understanding of food, nutrition and other health-related issues
• taking part in fun and engaging activities that support their development
• feeling safe and secure
• getting access to the right support services
• returning to school feeling engaged and ready to learn
The feedback from HAF providers, children and young people and their families has been amazing with children and young people reporting that they have tried new activities and sports, made new friends, tasted lots of different kinds of foods and learned lots of new skills.

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Created by a Family to Make the Difference; Home From Home Care provides specialist residential care for adults (18+) with learning disabilities, autism and complex physical health and mental health needs. We design bespoke support and environments tailored around each individual based on their needs and aspirations to enable them to lead a fulfilled adult life.
Our services incorporate homely environments of varying sizes and styles, designed for small groups of compatible individuals to live within an extended family ethos, on their own terms.
As a family ourselves, we are driven by wanting to make the difference by setting high standards in everything we provide. Our specialist residential care services are continuously evolving to meet the complex needs of individuals requiring a bespoke service. Our uncompromising approach, ongoing investment and commitment to a sustainable future are reflected by our dedicated staff teams and high-quality therapeutic services.
We deliver fulfilled days for each individual through effective and personalised care and support, focusing on independence, self-worth and new opportunities. We build on life skills from education to ensure each individual continues to progress and develop to their fullest potential.
Get in touch and we would be happy to talk through everything in more detail.

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Hope Meadows Equine Assisted Recovery CIC is a community interest company offering equine assisted therapies and activities to support the emotional well-being and mental health of children and adults living in Lincoln, Hykeham, and the surrounding areas.
The organisation is based on conversations with people in these communities, rooted in what would help them to live well and build fulfilling lives.

At Hope Meadows, they believe that there is a unique power in building a meaningful relationship with horses. They are keen to make these special animals accessible to those in our local community who might need them.
Most of the sessions take place on the ground, but they also offer therapeutic horse riding. Being around horses can help people find a sense of calm that allows us to process thoughts and feelings, sometimes without even saying a word.

Within the team they have staff who have significant experience of working with SEND young people. This allows most young people to be able to access the therapy, activities and ridden programme. Part of the offering provides a free support group for parent carers each week, as well as a free activity group for young adults with additional needs.
They are passionate about keeping the sessions affordable and they usually have spaces available for free or subsidised sessions for adults. No experience or referral is necessary, and they are open to everyone.

Working with audiences at the Hub; in schools; and community and care settings across the District and County, the Hub dance programme provides creative opportunities for participation and performance on a regular basis, ensuring a varied high quality mix of contemporary offerings that are inclusive, accessible, affordable and always forward thinking.

The Dance & Disabilities programme aims to give young people and adults with disabilities an opportunity to enjoy dance in a fun and safe environment, supporting well-being and allowing them to feel more empowered in their communities.

Unify Youth Dance classes are relaxed, inclusive, and fun creative dance sessions for young people with learning disabilities, autism and/or physical disabilities aged between 10-24yrs.
The sessions focus on developing dancers to become more confident in dance by experimenting with different ways of moving through prop explorations and creative tasks.

Nicole Woodcock is a Clinical Hypnotherapist and lecturer in her practice Hummingbird Hypnotherapy. Working with adults and children from the age of four.

With a background of working in a social care setting for 15 years Nicole now uses clinical hypnotherapy to work with children with additional needs and neuro diversity.

Offering a supportive and relaxed environment for positive therapy.

Teaching young people how their brain works and incorporating psychotherapy with trance relaxation.
Sessions available face to face and online via zoom.

Nicole runs LPCF's "Learning to see the light after Lockdown" sessions.

Day centre for adults with Autism & Learning disabilities.
We are Lincoln's new Day Centre.

We are a privately run day centre for adults with Learning Disabilities and Autism, aged 18 and over. We provide person centred support within a safe and fun environment. We look to promote personal development, social and independent living skills in a setting where everyone and everybody feels welcome.

We're open Monday to Friday, 9am to 4pm, 49 weeks a year.

Activities we cover range from baking, sports, dance, arts & crafts, bowling, golf, nature walks, lift skills, discos, team building exercises, cinema trips, drama sessions and more!

We love our centre, and we are committed to ensure everybody who attends Inclusion21 loves it too.

If you have any questions, please don't hesitate to get in touch.

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InspireU offers alternative education to any young person aged 16-19, or to age 24 if you have an Education, Health and Care Plan (EHCP).

They work at seven different sites around the county: Boston, Grantham, Lincoln, Louth, Market Deeping, Skegness and Spalding. Young people come to them for lots of reasons, but all seeking the same thing - something a bit different, that offers support in the transition between education and adulthood.

They work at your pace, as quickly or as slowly as you need to go, and provide you with all you need to take those next steps - whether into employment, onto an apprenticeship, or into further education. With teachers, support workers, employment officers and job coaches, you will be well supported in every area of our work-based study programmes.

Your time will be spent improving your level of English and maths if needed, alongside gaining qualifications in ICT and Employability-related subjects. You will also follow your own individualised programme of study designed around your needs and focusing on the skills needed for Adulthood, such as, employability, communication skills, team work, independent living skills, community inclusion and so much more.

Kooth is a digital service available to all 11- 18 yr olds, this extends up to 25 yrs for Care Leavers and those with SEN.

Kooth provides safe, free and anonymous text based 1:1 counselling and youth support. This is available from 12 - 10 pm Mon - Fri and 6 - 10 pm at the weekend, every day of the year

The Kooth platform is available 24/7 and is a safe and supportive online community where children and young people can boost their wellbeing with access to therapeutic content and peer to peer support via our magazine, live forums, static discussion boards, mini activities hub, journaling, goal setting and much more.

Link to the an explanatory Kooth video https://vimeo.com/318731977/a9f32c87de

See 13 item(s) in LPCF Resources Library

Land and Leaf Collective creates inclusive Forest School communities that connect people with nature and each other. They provide hands-on outdoor learning to inspire curiosity, resilience, and environmental stewardship. They offer high-quality, free, and inclusive Forest School programs in Lincolnshire, accessible to all and tailored to diverse needs.

Their Inclusive Forest School sessions enable participants to experience the therapeutic benefits of nature through play, exploration, and creativity.
Their programmes foster resilience, mindfulness, and positive social connections, particularly valuable for participants with SEND, Autism, or SEMH challenges.

Lincolnshire County Council's Children with Disabilities Team are part of the Special Education Need and Disability Service.

The social work team provides a statutory service for children and young people with a severe and profound disability.

Services may be available to those that are eligible after being subject of a social care assessment.

See 2 item(s) in LPCF Resources Library

We are Children's Health and we consist of a team of Health Visitors and CYPN'S (Children and Young people's nurses).

We support parents in inclusion by working with SENCO'S, ESCO'S and providing continence products.

See 6 item(s) in LPCF Resources Library

Children's Centres offer child and family health services, and advice and information for families. They provide stay and play sessions to support children's development, including groups specifically for Early Years children with SEND. Some centres have bookable sensory rooms which can be accessed on a 1:1 basis for parent/carers and children.

In addition, Children's Centres can provide adult learning and volunteering opportunities, and support for parents on a wide range of issues, including the delivery of parenting programmes.

Children's Centre Skills Development Officer
Offers friendly and personalised information, to identify skills gaps and support parents to enter into learning, volunteering, apprenticeships and employment.

Also provides individual support by tailoring a personal development plan for individual parents/carers, identifying next steps and supporting them to achieve their goals.

Dyslexia Outreach is a county-wide service provided by Lincolnshire County Council. The team consists of two specialist teachers who have a wealth of expert knowledge and experience in teaching and supporting students with Dyslexia and literacy/maths difficulties, across the Primary and Secondary phases and beyond.

Dyslexia Outreach offer support, advice and training within schools. They also work closely with parents, supporting and advising through helpline and email contact, this is a free service for parents.

Reassurance and advice can be offered to help develop understanding of literacy and learning difficulties. This includes how to support to children to develop literacy and learning skills through home strategies, transition advice, signposting to other services and available resources

See 7 item(s) in LPCF Resources Library

Early Years Specialist Teachers based in localities provide ongoing support for Childminders, Nurseries and Pre Schools /EY SENCOs who have children with SEND.

Early Years SENCOs can also request support via the Early Years and Childcare website.

Early Years and Childcare support deliver a range of training opportunities such as networks and SENCO training for Early Years Providers to ensure that they meet the requirements of the SEND Code of Practice.

Early Years Specialist Teachers also target their support for Children who are looked after, Vulnerable children on a plan who are behind age related attainment, Children at risk of exclusion, Transition support.

Early Years Specialist teachers are based under the Early Help Locality Teams so can link with Health and Social care.

Dingleys Promise
Using their experience of working with SEND children over the last 40 years, Dingley’s Promise have created training and resources to enhance skills, improve confidence and inspire, to cultivate an inclusive environment for all children. The training is designed for everyone and has supported thousands to enhance their ability to include and support children with SEND. Each course has been designed to enable flexible remote learning and includes webinars and resources.

“Dingley’s Promise Training is a very useful tool, It was easy to follow and understand and the short quizzes really helped "

During the session participants will discover how to access the training for free, and be given an overview of each module and the resources included.

See 25 item(s) in LPCF Resources Library

ESCO is committed to improving the delivery of services for children and young people aged 0 - 18 years with significant and complex additional needs who require targeted coordination of services.

This can include:

• Children who have a greater difficulty communicating
• Have sensory or physical difficulties
• Complex health needs including those with a disability
• Babies leaving hospital with medical and other support needs
• Children with life-limiting conditions and palliative care
• Children with multiple and significant factors affecting their learning and development.

All need additional support during much of their daily lives and it is probable that there will be a long term impact on their development and learning.

ESCO keyworkers also offer support through drop-in appointments.
These provide the opportunity for parents/carers to meet with an ESCO Keyworker to discuss the available information, services and support in Lincolnshire.

ESCO offers a bookable one hour session by phone.
Parents/Carers can book an appointment directly with Lincolnshire's Customer Service Centre on:
01522 782 111

See 1 item(s) in LPCF Resources Library

Is one-to-one training designed to equip young people who are entitled by Lincolnshire County Council to home to school or college transport with the confidence and skills required to travel independently.

ITT is facilitated by Independent Travel Trainers who will work closely with school/college staff, parents, carers and the trainees.

Anyone who is entitled to free home to school transport or Post 16 supported home to school/college transport is able to apply for Independent Travel Training.

The Local Offer is part of the Special Educational Needs and Disability (SEND) reforms from the Children and Families Act 2014 and is detailed in the Code of Practice for SEND 2015..

There are two main purposes for the Local Offer:

• To improve information about services and provision available for families, children and young people with Special Educational Needs and Disabilities, and to make it easier for all families to find this information by making it available in one place.


• That by working directly with families, children and young people on developing the Local Offer, Local Authorities and Health partners can improve provision.
  Lincolnshire's Local Offer includes leisure and activity providers, health and care services, education providers and support groups.

The Local Offer, as with the rest of the Family Services Directory, is provided to help you find services more easily.

See 3 item(s) in LPCF Resources Library

Portage is a scheme for teaching pre-school children with special educational needs, new and useful skills in their own homes. The basis of Portage is weekly home visiting, with the Portage worker and the parents/carers working together.

The Portage Home Visitor works with parents in their home because young children initially learn best in the security of their own home with the people who know them. The Portage Home Visitor visits the family at home weekly or fortnightly and plans activities with the parents/carers.
Every activity is written down, as is every success. Each child’s progress is reviewed at least every three months and the need for ongoing Portage is discussed.

Portage is a home visiting educational service for pre-school children with special educational needs. These may be pre-school children who have learning difficulties, delays in their development and/or physical difficulties. The Portage Teams aim to help families by working with them in their home, helping them to meet the needs of their child.

Children can be referred from birth by parents/carers or any agency involved with the child such as health visitors, general practitioners, speech and language therapists, occupational therapists, educational psychologists, physiotherapists, paediatricians etc.
Each area has its own portage team.

The Special Educational Needs and Disabilities (SEND) Team at Lincolnshire County Council has embarked on an Employment project.

The project is aimed at embedding an employment pathway into our special school's existing Post-16 curriculum offer, which significantly increases young people's chances of obtaining paid employment upon leaving education.

The project aims to create opportunities; not only for our young people to enter the world of work but also for local businesses to develop and grow themselves in breaking down barriers associated with disability. They are working with schools to develop realistic and aspirational pathways for our young people to follow as they prepare for adulthood.

In addition, a SEND Employers Forum has also been created to develop a support network for employers, educators and other key stakeholders to benefit young people with additional needs across the county. The Forum is an opportunity to discuss and overcome challenges, explore new and innovative ways of working, drawing upon the skills and expertise around the table to promote and increase Supported Internships across Lincolnshire.

See 9 item(s) in LPCF Resources Library

The SEND Team have experience with supporting families, children/young people with a varying degree of SEND that have required support and intervention above that which can be provided in an educational setting.

The SEND team are co-ordinating and aspirational programme to improve SEND provision through the "SEND Transformation in Lincolnshire" agenda.

Also new is the development of the "Valuing SEND Toolkit" which seeks to support clearer identification of SEND needs to map against what various provisions can provide.

See 15 item(s) in LPCF Resources Library

This service is delivered by teachers who have specialist qualification in the education of sensory impaired children and young people.

Experts include teaching assistants working with those with sensory impairment and an educational mobility officer for visually impaired children and young people.

The team is involved from an early stage soon after birth and through the learning journey to independent adulthood.

The team work alongside parents to support the development of their child, then with settings and schools to ensure the child or young person can access the full educational curriculum.

Individual support or advice is available to all children and young people with diagnosed sensory impairment.

Bespoke training is given to schools and settings with children and young people with sensory impairments

See 1 item(s) in LPCF Resources Library

ECLIPS are part of Lincolnshire County Council's Specialist Teaching Team, they specialise in supporting children and young adults with speech and language difficulties.

They work closely with parents/carers, schools/colleges and other professional agencies such as the NHS Speech and Language Therapy service.

They are keen to promote Makaton training and support options for families and educators. Makaton is an internationally recognised language development programme that supports a multi-modal approach to teaching communication, language and literacy skills.

It can be used to support a wide range of communication and language needs from individuals with profound, moderate or mild learning difficulties, individuals with Developmental Language Disorder, individuals with no or developing speech, individuals with autistic spectrum disorders or sensory impairments to individuals with EAL.

The Dyslexia Outreach specialist teachers are also part of LCC's Specialist Teaching Team and offer advice and support for individuals with Dyslexia.

See 29 item(s) in LPCF Resources Library

The Lincolnshire Young Carers Service supports young carers up to the age of 19.

Young Carers may be helping and supporting a family member or friend due to disability, mental ill-health, illness or substance misuse.

A young carer may be providing support with:

• Cooking, housework and shopping
• Physical care, such as helping someone in and out of bed
• Personal care, such as assistance with dressing, toileting and administering medication
• Collecting prescriptions and arranging GP or hospital appointments
• Looking after brothers or sisters
• Helping with communication
• Managing the family budget
• Emotional support

See 4 item(s) in LPCF Resources Library

Liaise is the Special Educational Needs and Disability (SEND) Information Advice and Support Service for Lincolnshire.

They provide information and advice relating to SEN and disabilities to parents, children and young people which is free, confidential and impartial.

This can include help with understanding SEND law, local SEN and disability policy and procedures, support in schools and colleges, resolving disagreements, education, health and care plans, exclusions and admissions and personal budgets.

They provide initial help and support by telephone and email, and can allocate a Liaise Caseworker if further specific support is required.

See 14 item(s) in LPCF Resources Library

Lincoln College Group consists of Lincoln, Gainsborough and Newark Colleges, which train 11,000 school leavers and adults a year across professional and industry courses, apprenticeships, A levels and Higher Education.

For more than 130 years they have been adding recognised economic and social value across the Region. Working with more than 1,200 local businesses in the East Midlands, they train 4,200 apprentices a year across a range of delivery models to meet employers specific needs. They pride themselves on being the most responsive training provider in the region.

Lincoln College Group is a not-for-profit charity. Unlike private training providers, their profit does not go to shareholders.

Lincolnshire Behaviour Outreach Support Service (BOSS) aims to reduce the risk of exclusion and develop the ability of schools to support children displaying distressed behaviours.
They offer targeted support for children, staff training and coaching, and parental support.

They work to increase the confidence and skills of Lincolnshire mainstream schools and academies, including parents and carers, in order to better support them to understand the causative factors of distressed behaviours and develop consistent strategies that can be utilised both within the school and at home.

See 4 item(s) in LPCF Resources Library

The Lincolnshire Carers Service is commissioned by Lincolnshire County Council and delivered in partnership with the Care & Wellbeing Hub and Carers First.
The Care & Wellbeing Hub provides the first point of contact for the Lincolnshire Carers Service, providing information, advice, and support to unpaid carers over the telephone, and Carers First work directly with carers in local communities across Lincolnshire so they can live their lives to the fullest.
They offer services to support carers at every stage of their caring journey allowing them to find the balance they wish to achieve in their lives.
They have friendly, knowledgeable staff to offer advice, guidance and information. Their support can differ and considers what's important to the carer.

See 3 item(s) in LPCF Resources Library

The Lincolnshire Cerebral Palsy Society is a local independent charity, here to support everyone in the County affected by Cerebral Palsy.

The experienced team understand the difficulties and pressures of daily life with Cerebral Palsy.
They provide help for treatment, education, training, equipment and welfare. They make grants or donations for the benefit of those with Cerebral Palsy.

LCPS cooperate with local authorities or other organisations providing local services for people with Cerebral Palsy.

Try to make living with Cerebral Palsy easier.

Short Breaks are for families living in Lincolnshire who have a child or young person with a disability and/ or sensory impairment.

The Short breaks eligibility criteria andinformation on how to access them are explained in the short breaks statement.

For more information please see the web link

See 2 item(s) in LPCF Resources Library

The Lincolnshire Down's Syndrome Support Group (LDSSG) are a parent-led charity whose principle aim is to enhance the lives of people with Down's Syndrome and their families in Lincolnshire.

Established in 1983 by a group of parents wishing to offer support and share experiences of parenting a child with Down's Syndrome, they still hold this value at the heart of our group.

LDSSG love to welcome new members and regularly hold events where families can gather to offer each other support, advice and most importantly, friendship.

They currently support over 70 families throughout Lincolnshire and see ourselves as one big family joined by a common thread they all love someone with Down's Syndrome and value the joy they bring to their lives!

Lincolnshire fire and rescue are able to give advice on home fire safety, evacuation plans and the fire setting intervention scheme.

The fire service may also be able to offer a free safe and well check in your home which may include the fitting of a free smoke alarm.

See 1 item(s) in LPCF Resources Library

Lincolnshire FA are the not-for-profit governing body for football in Lincolnshire. They support grassroots football to thrive by developing and sustaining new and existing opportunities across the county.

They work with a range of local clubs and organisations across Greater Lincolnshire to offer both pan-disability and impairment-specific football, for all genders across a range of age groups.

For more opportunities on how to get involved, please contact us below:

Lincolnshire Parent Carer Forum is the official independent parent carer forum in our county and represents parents and carers of family members with disabilities and Special Educational Needs (SEN).

We are tasked by the Department for Education in the SEND Code of Practice(2015) to work alongside Education, Health & Care to help improve the quality , range and accessibility of services. We host coffee mornings and events around the County.

Please see our website events page for more information.

We are always on the look out for volunteers to help with our work.

See 3 item(s) in LPCF Resources Library

LPFT provide Children and Young People Mental Health and Emotional Wellbeing Services in Lincolnshire. The Services range from school based emotional wellbeing services (Healthy Minds Lincolnshire) for young people up to 19 years old (25 years if SEND or Leaving Care ) to more specialist mental health services (Child and Adolescent Mental Health Services - CAMHS).

LPFT CYP Services can be contacted directly for advise and young people and parent/carers can self-refer. For self-help advise and information on how to contact the services and things to consider if you're thinking about self-referring please see website

See 19 item(s) in LPCF Resources Library

Lincolnshire Sensory services provides specialist services for anyone in Lincolnshire living with sight and/or hearing loss.

The team and service understand the practical and emotional challenges that people with sensory loss can face in their everyday lives and, through their work, they focus on promoting independence, wellbeing and accessibility.

They aim to help people maintain independence and dignity in every aspect of their lives.

LSS also work closely with carers families and other professionals to increase their understanding of the impact of sensory loss and to assist them to build a wide network of support

Lincolnshire Young Voices is a newly formed group of young people with Special Educational Needs and Disabilities (SEND) who provide a voice for young people in the county.

The group is aimed at young people with SEND aged 11-25 years.

See 6 item(s) in LPCF Resources Library

Linkage Community Trust is a charity delivering high-quality specialist education, day services, care, employment and support services for people with learning disabilities.

Their vision is that people with learning difficulties and disabilities have opportunities and choice, and are supported to achieve their aspirations.

They support and encourage individuals to make decisions about their own lives and enable them to develop skills and behaviours to live the life they choose based on their talents and abilities.

See 2 item(s) in LPCF Resources Library

The LPFT learning disability service is a specialist service that works with adults who have a learning disability, who due to their learning disability can’t access mainstream services to have their health needs met. The Learning Disability service offers the following:
• Support with mental health which includes:

Anxiety

Mood

Psychosis

Trauma

• Support with behaviours of concern which includes:

Assessment, including observations and interviews with those who know the person best

Intervention strategies which may include education and training

Helping others understand function of behaviours and assist with plans to enhance the quality of live for the service user and their carers

• Support with physical health where support is needed with

Movement and mobility

Nutrition including feeding and swallowing

Liaison with mainstream physical health services to support reasonable adjustments to enable access for adults with a learning disability

• Urgent assessment and support where there is risk of placement breakdown

The learning disability service covers the whole of Lincolnshire and has teams in Lincoln, Boston and Grantham.

  Contact(s):- Laura Copus /   Tel:- 01522 309136   Web:- www.lpft.nhs.uk

The new Lincoln Keyworker team will be working to support Autistic children and young People (aged up to 25) or children and young people with Learning Difficulties and who are at risk of hospitalisation.
They will be working with the children, young people and their families to make sure their wishes are heard and to help them navigating a system which, for some, can be confusing and overwhelming.
Their aim is to make sure that hospitalisation is an absolute last resort and that all avenues are explored first. They want to work with other agencies to help put the right support packages in place to help these amazing children and young people achieve their dreams and ambitions.
In order to access this support, there are a few referral routes including the Self-Referral option and how to access the DSR (Dynamic Support Register). Additionally, for Autistic children, young people and their families there is also the development of a specific all-age Autism Virtual Hub planned over the next year which should offer lower level support if needed before, during and after diagnosis, whether or not someone is placed on the Dynamic Support Register.

See 1 item(s) in LPCF Resources Library

Lincolnshire County Council, NHS Lincolnshire Integrated Care Board and Lincolnshire Partnership NHS Foundation Trust have partnered with BFB Labs to offer children and young people in Lincolnshire free access to Lumi Nova from 8th January 2025

Lumi Nova: Tales of Courage is a digital therapeutic mobile game supporting children with fears, worries and anxiety. Designed for children aged 7-12 years, Lumi Nova helps children to reflect on their feelings, build resilience, and learn lifelong skills to self-manage their worries in a fun intergalactic adventure.

Key features:
• Recommended by NICE (The National Institute for Health and Care Excellence)
• Lumi Nova offers a Gold Standard of Care by facilitating graded exposures (the active ingredient of Cognitive Behavioural Therapy) with psychoeducation
• Parent/guardian supported intervention
• Built in safeguarding & accessibility features
Help your child build confidence and self manage worries with a fun mobile game.

Watch this short animated video to learn more:https://www.youtube.com/watch?v=mmgrU4zXU3M&ab_channel=BFBLabs

See 1 item(s) in LPCF Resources Library

We are the leading charity for deaf children. If your child has mild, moderate, severe or profound hearing loss, we’re here for you. We also support children with temporary hearing loss, such as glue ear.
We provide a wealth of information and guidance for parents and carers of deaf children and young people covering these areas and more:

Childhood deafness explained

Technology options

Communication choices

Education support

Benefits and rights

Building young people’s pride in their deaf identity

Developing young people’s confidence in asking for support
We also offer a welcoming community of families, giving parents and carers the opportunity to connect through online events, to meet families nearby and to access the real life experience of other parents and carers.
Why not call our Helpline as a first step.

See 1 item(s) in LPCF Resources Library

  Email:- ndcs@ndcs.org.uk   Tel:- 0808 800 8880   Web:- www.ndcs.org.uk

Lincolnshire Cloth Nappy Library is a volunteer led group operated by NCT. They provide access to free and low cost reusable nappy hire across all of Lincolnshire, from premature to older children.

This is a specialist service and is offered to all professionals working with children aged between 0 to 19 years, within the county of Lincolnshire.
It has been developed to provide support and education to professionals, to further support families who have children with Autism/suspected Autism.
Key aspects of the role are to:

Provide up to date information and signpost to appropriate services.

Co-ordinate and provide a liaison service between Community Paediatricians and other Health, Education and Social Care Professionals, CAMHS and Educational Psychologists as necessary.

Suggest and provide additional strategies to support and manage behaviours,promote sleep, continence and positive diet.

Provide support and advice to parents of children with autism to support
understanding and promote positive coping strategies.
Consent
In order to support families and individual children, it is necessary to receive parental consent.
Please be assured that all information is treated confidentially and records which we hold will be retained as per United Lincolnshire Hospitals NHS Trust policies and comply with the Data Protection Act 1998.

Access to Service
The Specialist Nurse for Children with Autism/suspected Autism does not hold a caseload, but supports other professionals to support families.

See 1 item(s) in LPCF Resources Library

  Email:- SpecNurseCYPAutism@ulh.nhs.uk   Tel:- 01522 309679

Lincolnshire Community Health Services (LCHS) Children's Therapy Service comprises Occupational Therapy, Physiotherapy and Speech and Language Therapy.

The service works across Lincolnshire with children and young people, aged 0-19, who have disabilities or speech and language problems.

It works with children and young people with varying degrees of need at universal, targeted and specialist level. Each service has its own commissioned referral criteria.

See 5 item(s) in LPCF Resources Library

Russell Outen-Coe is the Designated Clinical Officer (DCO) for Special Educational Needs and Disability (SEND).

• He is representing Lincolnshire's ICB which is part of the National Health Service (NHS).
• The ICB brings together your local Doctors (GPs) and other health professionals (like nurses and therapists) to plan, buy and oversee the quality of the health care services in your area.
• It aims to improve your health services and respond to the health needs of everyone in the area by including patients and the public when we make decisions.
• Children and young people with Special Educational Needs and Disability need really good support across Education, Health and Social Care to help them to be the best that they can be.

See 2 item(s) in LPCF Resources Library

As the Children & Young People Manager I am working with Local Authority, primary care, NHS providers and voluntary organisations to support national, regional and local priorities around asthma, epilepsy, diabetes and transition to adult services.

PAACT is a Lincolnshire based support group, run by parents of Autistic children. They provide support for parents, guardians and carers with children and young adults who have an Autistic Spectrum Condition and/or associated neurodivergent conditions, who suspect, are in the process of a diagnosis, or have a diagnosis.
They are a friendly, informal, non-judgemental support group, aiming to help family, friends, and professionals to access advice, support, signposting, training, and activities within Lincolnshire. There is no requirement for a formal diagnosis to access their help and support. They are run solely by volunteers and each committee member has a child/young adult with an Autistic Spectrum Condition and associated neurodivergent conditions.
PAACT offers:
• Twice monthly support meetings (daytime and evening) in Lincoln, and every other month (daytime) in Gainsborough
• An exclusive monthly swimming session (3rd Saturday of the month) at Wragby Swimming pool
• A closed Facebook and email group for support and advice
• Various activities throughout the school holidays for paid members, which are mainly exclusive only to PAACT and at a subsidised price
• Workshops/training run by Andrew Whitehouse from People First Education
• Access to ASDAN learning for those who are home educating or wanting to teach practical life skills through ASDAN's "Life Skills Challenge programme" and various "Short Courses", all designed to foster personal, social, and work-related skills, enabling learners to discover, develop and make full use of their abilities
• Monthly subscription to "paactfamily.com", a membership site where you will get short videos on everything Neurodiverse, from a wide range of speakers, weekly Q&A live sessions, monthly workshops or talks from the likes of Geoff Evans, Andrew Whitehouse, Olga Bogdashina and so on. They will also be having a podcast covering a wide range of subjects and speakers, which all involved will have lived experience from having a diagnosis to being a family member or awaiting a diagnosis
• Annual Family Membership (to access activities) is and annual Professional Membership is £20

Are based at St Francis Special school and commissioned by Lincolnshire County council.

They provide free support to all Lincolnshire mainstream Primary and Secondary schools who are seeking support to include pupils with physical disabilities.
This includes pupils in transition at each key stage (Nursery and post 16). Their Outreach team has a wealth of experience in teaching and supporting pupils with physical disabilities.
They are able to offer guidance and support in curriculum access as well as moving and handling needs. They regularly Liaise with NHS Physiotherapy, Occupational Therapy and Speech and Language Services.
They offer support, advise and associated training in the assessment of needs and provision.

We’re the only UK charity dedicated to supporting those affected by H.I.E. (Hypoxic-Ischaemic Encephalopathy) – lack of oxygen to the brain at birth. We offer free emotional, practical and financial support, for any family regardless of cause or outcome. We provide free parent packs to neonatal units across the UK to offer families support and advice as and when they are ready.

In addition, we can provide:

Parent support: Free packs for neonatal units and specialist healthcare providers, designed by parents, for parents. Gentle information and reassurance that they aren’t on their own, as well as some items to help them on their journey
Equipment fund: Helping families access equipment that isn’t otherwise available, with a “needs not means tested” application process
Counselling / trauma therapy: Fully funded counselling by a trained counsellor, either on-line or face-to face (depending on preference)
Online resources: Website (with accessibility toolbar converting the information into many languages) and social media platforms, sharing information and signposting
Peer support: 1-1 support from volunteers, parents and grandparents, all of whom have lived experience of H.I.E
Community activities: Regular events online, at different times, covering different topics. This includes our “let’s chat” sessions
Family connections: “Little HIEroes” private Facebook group and WhatsApp group for families; separate dedicated groups for dads, and bereaved families
Events: Support during key events and information sessions (e.g. advanced care plans, sibling sessions, understanding trauma)
In-person: “Peeps together” events across the UK and fully accessible venues
Bereavement support: Sulley’s Fund to help support bereaved families, specialist bereavement counselling, 1-1 contact for families

See 3 item(s) in LPCF Resources Library

Pelican Trust Ltd. has been a strong part of the Lincoln community for nearly 30 years. Our services are greatly needed and appreciated in Lincoln and the surrounding areas which we hope to continue for years to come.

We have seen first hand what we can achieve with individuals who use our services and work alongside us. Through patience and perseverance their goals - however big or small - have been achieved at the Trust.

We strive to be an effective and supportive organisation providing meaningful work and training for people with mental health issues, physical disabilities and learning difficulties and disabilities.

Through our various departments and training we provide a service that helps individuals gain skills and confidence.

Penderels Trust is a charity providing direct payment support services to adults and children with disabilities and long term health conditions.

They provide these services under contract to Lincolnshire County Council. Their friendly and experienced independent living advisers in the Lincolnshire team work with many families with children with disabilities in the county.

A direct payment can make a real difference to a family and doesn't need to be complicated. They will support you from the very start, making sure your family gets the most from your care and support package, with the peace of mind that we are always there to support you if you need them.

See 1 item(s) in LPCF Resources Library

The new team will support young people with a physical disability age 14 – 25yrs who are going through transition to adult services. They will be working closely with the Children with Disabilities Team and other teams across children’s services to ensure that the young person’s wishes and aspirations for their future are discussed and plans put in place to support them achieve these.

They will be working with the young person and their families and carers to ensure that they have the information they need to help them through the transition.
The team is small but experienced, consisting of Social Workers, Occupational Therapists and Maximising Independence Workers who all work in a strengths-based approach to maximise the young person’s independence.

The team will also be gathering information through co-production with young people, families and carers and other professionals to support us improve and shape our services for those using the service in the future.

Referrals to the team will come from Children with Disabilities Team, SEND workers and parents & carers directly.

Rett syndrome is a rare neurological disorder affecting mainly females and very few males.

It is present from conception and usually remains undetected until major regression occurs at around one year of age, when children may lose acquired skills and become withdrawn. Genetic but largely not inherited, Rett syndrome is usually caused by a fault on a gene called MECP2 which is found on the X chromosome.

People with Rett syndrome have profound and multiple physical and communication disabilities and are totally reliant on others for support throughout their lives.

Rett UK provide free support, advice and resources to anyone affected by Rett syndrome. Amongst their services their Family Support Team offer: help with diagnosis, support groups, advocacy, getting started with communication support and training, regional roadshows, accessing a specialist Rett syndrome clinic, as well as bereavement support.

For a while now LPCF have been involved with Lincolnshire County Council (LCC) and the SEND alliance in developing access to core induction skills and knowledge modules of learning for Special School and Mainstream staff.
This was through involvement alongside partners in the 5 year Special School strategy.
During the process LPCF suggested that the training provided should not be restricted to staff but should also be made available to parents as part of the E-Learning process.
The SEND alliance have had the foresight, in the spirit of co-production, to accept this and approve parents access to complete the seven modules available:-
What is Inclusion?
What is Inclusion? (Bonus Content).
Respecting Individuals.
Awareness of Neuro-Typical Child.
SEND Code of Practice.
Working with Professionals.
Types of SEND.
To access the training parents need to be members of LPCF.

Sense Specialist Services for Children & Young People is a team of specialist teachers of multi-sensory impairment (QTMSI) and Senior/ MSI practitioners with a wide range of skills and experience working with children and young people who are deafblind/multi-sensory impaired.

The Team Supports:
• Children and young people who are deafblind/multi-sensory impaired
• Children and young people who have medical conditions that is likely to cause problems with sight and hearing as they grow older – for example Usher syndrome.
They also offer some support to children (and their families) that have either a hearing or vision impairment, and additional needs, which impact on access to information, communication and mobility. This could include information and advice, signposting and access to family events and pre-school groups.
Sense Specialist Services for Children include:
• Information and advice from a named practitioner within the specialist services team
• Support with the EHCP/review process including; attendance at educational meetings, joint working with professionals and provision of specialist advice to support access to appropriate learning environments.
• Support at hospital appointments and health clinics including; support to access appointments, liaison with health professionals and specialist advice regarding their multi-sensory impairment.
• Supporting letters and reports to help navigate the education, social care and health systems.
• Reports to identify their multi-sensory impairment, to ensure that they receive the specialist support they need.
• Holistic assessments to highlight their individual strengths and identification of strategies to support them to develop.
• Advice and support as they prepare for transition to school/college/ adulthood.
• Signposting to specialist assessments where appropriate

Virtual Buddying(Sian) - Our free virtual befriending service matches anyone with disabilities aged over 5 with a volunteer. You'll meet online once a week with someone who has shared interests, sense of humour and personality. You could catch up about your week, watch a film, do an online class, craft, game or bake together.
Siblings and Young Carers - We know that being the brother, sister or child of someone who has disabilities can be challenging. Sometimes, it's nice for these people to be able to chat or do activities with people their ow

Snap is an inclusive, support and encouragement group for any individual with any disabilities or additional needs of all age groups, based in Lincoln.
We also welcome and support parents, carers, families or professionals living, supporting or working alongside them.

Maybe you have just begun to realise that your baby or child has additional needs, you can also attend Snap. No diagnosis needed. We understand it takes time to get a diagnosis and we never want you to feel you cannot get support.

You are all very welcome to join us at our "pop in" mornings. The Snap team is looking forward to welcoming and supporting you.
• We can support, encourage, give advice, signpost or pray for you through our Mobile: 07900 635 366. Call or text The mobile is on office hours Monday-Friday.
• If you are struggling financially and are in need of a Food Parcel or debt advice we can signpost and support you through a network of organisations ( if you live in the Lincoln area only). You are not alone, please do not be hungry or get overwhelmed, there are organisations who we network with who can support you.
• Just want a chat, feeling isolated- you can whatsapp video chat us to see a friendly face.
• We have a dedicated Prayer support team, have a prayer request or need some prayer, please contact us.
• Texts: Would you like to receive weekly encouraging texts, please text us your name and message us?

For more details about our "pop in "Meetings please contact us

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Special Olympics Lincolnshire is part of the country's largest provider of year -round sports training and competition programme for people with learning disabilities.

Special Olympics Lincolnshire have to date 68 athletes training in sports for people with a Learning (Intellectual) Disability in Athletics, Badminton, Handy Horsemanship Equestrian, Tennis, Gymnastics and Young Athletes Programme for 2-7 year old plus football for 8-12 12-16 and 16 plus.

There are currently 95 Special Olympics groups in GB run by 3,500 volunteers and 6,500 athletes who all benefit from National and International sports programmes, but as there are 1.2 million people with a learning disability in the country their aim is to increase the awareness of disability sport at all levels and abilities.

See our Facebook Special Olympics Lincolnshire.

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Help and advice available in Lincolnshire for everyone during pregnancy, when giving birth and during the first two years of a child's life.
Lincolnshire’s 48 children's centres are core to our Start for Life offer. The centres offer free stay-and-play drop-in sessions and universal programmes for all families from antenatal to age five. Further support is also available for children and young people 5 to 19 (25 SEND).

steps2change is an NHS talking therapies service for Lincolnshire. We are a part of Lincolnshire Partnership NHS Foundation Trust.

At times, it is completely normal to feel anxious, low, sad, overwhelmed and frustrated. For some people these feelings can persist and have a negative impact on their life, sometimes leading to a common mental health problem such as depression or anxiety.

If you feel that you may be experiencing a common mental health problem, it is important to seek the right help sooner than later. Here at steps2change we are committed to help you with your needs. All of our therapies are recommended by National Institute for Health and Care Excellence (NICE). NICE recommends that therapy services should provide the least intrusive, most effective intervention first. We offer a range of talking therapies tailored to meet your individual needs. They are free of charge, proven to be effective and helpful and provided by experienced and qualified professionals.

You can self-refer without the need of contacting your GP or another healthcare professional. If you prefer, you can speak to your GP first and they will be able to refer you to steps2change Lincolnshire.
When we receive your referral, we aim to ensure that you receive the support you need. You will be contacted by telephone to arrange an appointment for an assessment. Following the assessment, a decision will be reached about the appropriate treatment available for you, or you may be signposted to other services that may be of benefit to you.

SWAN UK supports families affected by a syndrome without a name – a genetic condition so rare it often remains undiagnosed. We are the only dedicated support network for these families in the UK and are run by the charity Genetic Alliance UK.

Our aim is that every family gets the support they need, when they need it, regardless of whether they have a diagnosis or not. We work with UK based families of children and young adults up to 25 years old who are searching for a genetic diagnosis.

Our network brings families together in a supportive community who understand the unique challenges of life without a diagnosis. We run fun events for the whole family, provide information through events and newsletters and have an extensive network of volunteer Parent Reps.

We educate professionals about the issues faced by families affected by a syndrome without a name and seek to help improve services so that all families can access high-quality coordinated care and appropriate testing or treatment.

We also champion the rights and needs of the undiagnosed community through the policy work of Genetic Alliance UK, and through initiatives such as SWAN Europe and the Solve RD Community Engagement Task Force.

Provide information and support to parents and carers of individuals with severe learning disabilities whose behaviour challenges.

They have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from the office or downloaded from the website.
Support is provided through email for parents and professionals, and telephone or email support for families.

Their vision is for anyone with severe learning disabilities whose behaviour challenges to have the same life opportunities as everyone else. They work to improve understanding of challenging behaviour, empower families with information and support, and help others to provide better services and more opportunities.

See 1 item(s) in LPCF Resources Library

The Electronic Assistive Technology Service (EATS) provides assessments and equipment for people with complex communication needs across the East Midlands.

Within Lincolnshire they also carry out assessments and provide equipment for environmental control needs.

Referrals for Alternative & Augmentative Communication (AAC) are received from the local Speech & Language Therapy (SLT) Service and, following a joint assessment they advise regarding next steps and provide equipment and training as appropriate.

The services are commissioned by NHS England and have clear referral criteria.

The Lincolnshire Carers Service is delivered in partnership by Lincolnshire County Council's Customer Service Centre and Carers First.

You can contact the Lincolnshire Carers Service to talk to someone about your caring role and they will listen and provide you with support. The Customer Service Centre is the first point of contact for all general enquiries regarding support for carers. You can contact the Customer Service Centre from 8am to 6pm, Monday to Friday, except on public holidays.

The Lincolnshire Carers Service can help you with:

• information, advice, and guidance specific to you as a carer
  
• the opportunity to talk in detail about your caring role (a carer’s assessment)
  
• support your conversations with people and services such as GPs, social care and hospitals
  
• practical training to help you in your caring role
  
• eligibility for benefits and financial support
  
• opportunities to access support groups and activities so you can meet others in a similar situation to yourself
  
• regular contact by telephone, Carers First website, monthly e-bulletins and “What’s On” guides containing details of groups supported by Carers First
  
• Carer's Emergency Response Plan, which is a plan that you are supported to create and which provides detailed instructions for others to follow in an emergency situation
  
• getting the balance right in your life again
  
• support to access a break or help around the home, depending on eligibility this may be funded through a carer's personal budget.

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The nursing team at St Francis Special School, employed by United Lincolnshire Hospitals NHS Trust support the health needs of the many children and young people who have complex and other health needs during the school day.

The nurses oversee the administration of medication, provide advice on fluctuating health needs over the school day, advise school staff and parents/carers where a child/young person becomes unwell during the school day and manage any unplanned/emergency situations such as prolonged seizures or respiratory concerns

The team liaise with other health professionals such as the Long Term Ventilation Nurses and Physiotherapists from regional specialist hospitals, the local Rapid Response Respiratory Physiotherapists as well as supporting face to face clinics with Community Paediatricians, Dieticians and the Children and Young Peoples Nurses who hold continence clinics at school.

They provide support and information for parents and carers of children and young people living with the eye condition nystagmus.
They also deliver awareness raising training for teachers and support staff and hold regional in person and online meet ups, workshops and training sessions for families.
Visit the website to download digital guides to nystagmus and the early years, education, benefits, registration, employment, driving and much more.
They also have a Facebook page.

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The Working Together Team is a National Autistic Society Advanced Status Accredited Service, commissioned by Lincolnshire County Council to empower mainstream settings and their communities. They advocate best practice and provide specialist support to upskill staff and empower settings to ensure autistic children & young people/those with social communication differences thrive through collaborative working with families and professionals.

Team members are skilled practitioners with specialist training and day-to-day hands on experience. In addition to staff and parent/carer training workshops, WTT can support settings to develop their autism inclusive practice, identifying the strengths and needs of their pupils and working with staff and families in school to tailor approaches considering reasonable adjustments and programmes of specific intervention, where appropriate.
Further information about school engagement with WTT and downloadable resources for settings, families and the CYP can be found on their website

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Tourettes Action is the UK’s only national charity dedicated to supporting individuals with Tourette syndrome and their families.
Staff, volunteers and supporters are engaged and energised in driving forward their mission.
Everything they do is grounded in their community’s needs and informed by both the voices of their community and research-based evidence.

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Laura has a studio in South Hykekhem and already runs Family FIT sessions there (as well as other adults sessions), and Kids Fitness Activity Days both there and in the village of Potterhanworth.
In the new year she is starting some sessions specifically for children who are home educated as well as sessions for 16+ with additional needs and/or disabilities.
Laura is a qualified SENDCo, teacher of 15 years and fitness coach.

The Virtual Autism Hub is an innovative source of all age autism support to empower autistic people and their parents/carers. They work closely with community groups and organisations to strengthen support for autistic adults, children and young people and parent/carers, increasing the range, breadth and reach of these groups.

As part of this, they offer a grants programme. They are now opening the 2023-2024 registration process for autism groups (existing or new) to apply for funding, and the deadline is the 31st January 2024.

They will offer Specialist Autism Navigators to work directly with people across the county to help them access statutory services and other local support. This support will be non-clinical and include advice, signposting to local groups and services, information about autism and diagnostic pathways, as well as some practical support with things like filling out forms or accompanying to first meetings.

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VoiceAbility provides advocacy services for Adults in Lincolnshire. Advocacy is a free, independent and confidential service available to help you to understand and be fully involved in important decisions about your life.

Advocacy is about helping you when you're making difficult decisions to:

• Speak up to make your views and wishes heard
• Think through different choices and options available to you so you can make your own decisions
• Represent your views if you are unable to do so yourself
• Understand your rights

VoiceAbility also represent the voices of people with learning difficulties and Autism at the Learning Disability Partnership Board and the Staying safe meeting. They also aim to make a difference by collaborating with a diverse range of agencies.