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Lincolnshire Parent Carer Forum
Lincolnshire Parent Carer Forum
admin@lincspcf.org.uk LPCF, PO Box 1183, Spalding, PE11 9EE
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Question Time

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Below are details of the Question time event - i.e. Service, Representative, Role, Description.

Once the Event has taken place, links to the Audio and Video recordings from Zoom will be available along with a list of questions asked and their respective recording time stamps.

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(Please note feedback should refer to the question and response provided and cannot include personal case histories.)

Question Time Event Details
including times questions asked


Presenter Logo
Event Date
04-11-2021

Guest Service
Health

Guest Name
Russell Outen-Coe

Guest Role
Russell is the Designated Clinical Officer(DCO) for SEND in Lincolnshire.

Audio File

Video File


Generic Feedback Link - to provide non question specific feedback select this link
00:02:27   
  Who is eligible for annual health checks?

00:03:39   
  Who diagnoses Dyspraxia in Lincolnshire?

00:02:56   
  Who actually diagnoses Dyslexia- school, Paediatrician or Optician?

00:06:44   
  Who refers a child to genetic testing and how long does it take?

00:08:04   
  Can a Paediatrician refer for an ASD assessment?

00:10:33   
  Do Paediatricians diagnose Pathological Demand avoidance in Lincolnshire?

00:11:00   
  Why isn't Tourette’s syndrome diagnosed in Lincolnshire?

00:12:33   
  What is the criteria for accessing an Occupational Therapist?

00:13:11   
  What courses are available after diagnosis of certain conditions e.g., Autism, ADHD, CP etc

00:14:33   
  Why do Lincolnshire have no NHS Sensory Integration Therapists for assessing, diagnosing and supporting SPD?

00:19:44   
  Why are there no clinical pathways given to GPs for diagnosis such as Ehlers Danlos Syndrome?

00:21:00   
  Do you believe professionals refer on to pass the issue to someone else. There has been some evidence of this identified in Mental Health with professionals making referrals that do not meet requirements?

00:29:30   
  Do you believe there is parental pressure on professionals to comply with parental wishes which may "adjust" a genuine professional’s view on referral rather than talking to a parent and being open that they do not see a strong need for referral.

00:30:48   
  Is it true that there is ONLY one specialist nurse for children with additional needs/complex disabilities for the whole of Lincolnshire when we desperately need more people with that level of knowledge and expertise?

00:31:15   
  Why are there no disability nurses offered for hospital appointments when the children are distressed?

00:33:46   
  Why do children need to wait to be seen by an Educational Psychologist for potential diagnosis of auditory processing disorder when it can only be diagnosed by specifically trained audiologists?

00:35:11   
  Have they looked into a complex case load for the paediatricians? Would like to see one appointment for different teams to attend together instead of lots of little appointments. That’s what bigger hospitals are doing and may work better for some families (but not all).

00:41:39   
  Why is there not a county wide digital platform that families with SEND can share and upload information THEMSELVES so they do not have to repeat information over and over and over again. It is detrimental to caregivers mental health to be constantly reporting using a deficit model.

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