Week of SEND 2025

Presentation by - Alison
ADHD Lincs is a registered charity which provides support and information to families and individuals who are living with Attention Deficit Hyperactivity Disorder (ADHD) and associated learning differences.
They are committed to raising awareness of ADHD and educating the public and professionals about the impact of ADHD on the individual, home life and society.

Their ultimate goal is to enable people with ADHD to realise their full potential. They have built an excellent reputation since 1996, providing training and support to the ADHD community.

Presentation by - Amy
The Children's Continence Service provides services to children across Lincolnshire (with a Lincolnshire GP). They see children with day time wetting from age 3 to 19 years, Nocturnal enuresis from age 5 to 19 years, and constipation and soiling from 0 to 19 years.

Children will be offered tier one support for constipation, daytime wetting, developing toilet skills and night time wetting by the Health Visitors or the Children and Young Peoples Nurses depending on their age. If Tier 1 staff assesses a need for tier 2 they will then conduct that referral.

For more details on the tiers of support please contact the team.

Presentation by - Julie
Healthwatch Lincolnshire is an Independent Champion for patients with any concerns relating to Health or Social Care.

All comments; positive or negative are collated and sent to the providers (no patient details are included.)

They also offer a signposting service should you not be aware of what to do, or where to go.

Presentation by - Eloise
Kooth is a digital service available to all 11- 18 yr olds, this extends up to 25 yrs for Care Leavers and those with SEN.

Kooth provides safe, free and anonymous text based 1:1 counselling and youth support. This is available from 12 - 10 pm Mon - Fri and 6 - 10 pm at the weekend, every day of the year

The Kooth platform is available 24/7 and is a safe and supportive online community where children and young people can boost their wellbeing with access to therapeutic content and peer to peer support via our magazine, live forums, static discussion boards, mini activities hub, journaling, goal setting and much more.

Link to the an explanatory Kooth video https://vimeo.com/318731977/a9f32c87de

Presentation by - Sally
The Lincolnshire Young Carers Service supports young carers up to the age of 19.

Young Carers may be helping and supporting a family member or friend due to disability, mental ill-health, illness or substance misuse.

A young carer may be providing support with:

• Cooking, housework and shopping
• Physical care, such as helping someone in and out of bed
• Personal care, such as assistance with dressing, toileting and administering medication
• Collecting prescriptions and arranging GP or hospital appointments
• Looking after brothers or sisters
• Helping with communication
• Managing the family budget
• Emotional support

Presentation by - Malcolm
Lincolnshire County Council, NHS Lincolnshire Integrated Care Board and Lincolnshire Partnership NHS Foundation Trust have partnered with BFB Labs to offer children and young people in Lincolnshire free access to Lumi Nova from 8th January 2025

Lumi Nova: Tales of Courage is a digital therapeutic mobile game supporting children with fears, worries and anxiety. Designed for children aged 7-12 years, Lumi Nova helps children to reflect on their feelings, build resilience, and learn lifelong skills to self-manage their worries in a fun intergalactic adventure.

Key features:
• Recommended by NICE (The National Institute for Health and Care Excellence)
• Lumi Nova offers a Gold Standard of Care by facilitating graded exposures (the active ingredient of Cognitive Behavioural Therapy) with psychoeducation
• Parent/guardian supported intervention
• Built in safeguarding & accessibility features
Help your child build confidence and self manage worries with a fun mobile game.

Watch this short animated video to learn more:https://www.youtube.com/watch?v=mmgrU4zXU3M&ab_channel=BFBLabs

Presentation by - Russell -DCO
Russell Outen-Coe is the Designated Clinical Officer (DCO) for Special Educational Needs and Disability (SEND).

• He is representing Lincolnshire's ICB which is part of the National Health Service (NHS).
• The ICB brings together your local Doctors (GPs) and other health professionals (like nurses and therapists) to plan, buy and oversee the quality of the health care services in your area.
• It aims to improve your health services and respond to the health needs of everyone in the area by including patients and the public when we make decisions.
• Children and young people with Special Educational Needs and Disability need really good support across Education, Health and Social Care to help them to be the best that they can be.

Presentation by - Tammy
Penderels Trust is a charity providing direct payment support services to adults and children with disabilities and long term health conditions.

They provide these services under contract to Lincolnshire County Council. Their friendly and experienced independent living advisers in the Lincolnshire team work with many families with children with disabilities in the county.

A direct payment can make a real difference to a family and doesn't need to be complicated. They will support you from the very start, making sure your family gets the most from your care and support package, with the peace of mind that we are always there to support you if you need them.

Presentation by - Heather
The new team will support young people with a physical disability age 14 – 25yrs who are going through transition to adult services. They will be working closely with the Children with Disabilities Team and other teams across children’s services to ensure that the young person’s wishes and aspirations for their future are discussed and plans put in place to support them achieve these.

They will be working with the young person and their families and carers to ensure that they have the information they need to help them through the transition.
The team is small but experienced, consisting of Social Workers, Occupational Therapists and Maximising Independence Workers who all work in a strengths-based approach to maximise the young person’s independence.

The team will also be gathering information through co-production with young people, families and carers and other professionals to support us improve and shape our services for those using the service in the future.

Referrals to the team will come from Children with Disabilities Team, SEND workers and parents & carers directly.