Peeps
Presentation by - Sarah
We’re the only UK charity dedicated to supporting those affected by H.I.E. (Hypoxic-Ischaemic Encephalopathy) – lack of oxygen to the brain at birth. We offer free emotional, practical and financial support, for any family regardless of cause or outcome. We provide free parent packs to neonatal units across the UK to offer families support and advice as and when they are ready.
In addition, we can provide:
Parent support: Free packs for neonatal units and specialist healthcare providers, designed by parents, for parents. Gentle information and reassurance that they aren’t on their own, as well as some items to help them on their journey
Equipment fund: Helping families access equipment that isn’t otherwise available, with a “needs not means tested” application process
Counselling / trauma therapy: Fully funded counselling by a trained counsellor, either on-line or face-to face (depending on preference)
Online resources: Website (with accessibility toolbar converting the information into many languages) and social media platforms, sharing information and signposting
Peer support: 1-1 support from volunteers, parents and grandparents, all of whom have lived experience of H.I.E
Community activities: Regular events online, at different times, covering different topics. This includes our “let’s chat” sessions
Family connections: “Little HIEroes” private Facebook group and WhatsApp group for families; separate dedicated groups for dads, and bereaved families
Events: Support during key events and information sessions (e.g. advanced care plans, sibling sessions, understanding trauma)
In-person: “Peeps together” events across the UK and fully accessible venues
Bereavement support: Sulley’s Fund to help support bereaved families, specialist bereavement counselling, 1-1 contact for families