Week of SEND 2024

Presentation by - Kelly
Action Duchenne has a very clear vision: a world where lives are no longer limited by Duchenne Muscular Dystrophy (DMD).
They have three core objectives and are proud that they spend 88.7p in every £1 raised on charitable activities (support, research and education)

Developing effective treatments for all by funding research, supporting clinical trials and campaigning for access.

Building a community by uniting and supporting families, educating about Duchenne and raising the profile of the condition.

Striving for a more inclusive society promoting the importance of human equality, day to day acceptance of disability and accessibility.
While they hope that research and clinical trials will one day lead to a treatment, or a cure for Duchenne, they believe it is vital to support families living with the condition today. They support families from diagnosis through their whole Duchenne journey.
They unite and support families, educating about Duchenne and raising the profile of the condition.
Their International Conference each November brings together Duchenne families, clinicians, therapists, researchers, pharmaceutical companies and, most importantly, those living with Duchenne muscular dystrophy from across the globe.

Their engaging ‘Science on Tour’ programmes are free workshops that run across the UK. The aim is to help you make informed decisions, understand more about the scientific research of Duchenne and get up to date information about treatment options.

  Contact(s):- Kelly Molkenthin /   Email:- info@actionduchenne.org   Web:- www.actionduchenne.org/

Presentation by - Kelly (parent carer support worker)
LPFT provide Children and Young People Mental Health and Emotional Wellbeing Services in Lincolnshire. The Services range from school based emotional wellbeing services (Healthy Minds Lincolnshire) for young people up to 19 years old (25 years if SEND or Leaving Care ) to more specialist mental health services (Child and Adolescent Mental Health Services - CAMHS).

LPFT CYP Services can be contacted directly for advise and young people and parent/carers can self-refer. For self-help advise and information on how to contact the services and things to consider if you're thinking about self-referring please see website

Presentation by - Becky ( Healthy Minds)
LPFT provide Children and Young People Mental Health and Emotional Wellbeing Services in Lincolnshire. The Services range from school based emotional wellbeing services (Healthy Minds Lincolnshire) for young people up to 19 years old (25 years if SEND or Leaving Care ) to more specialist mental health services (Child and Adolescent Mental Health Services - CAMHS).

LPFT CYP Services can be contacted directly for advise and young people and parent/carers can self-refer. For self-help advise and information on how to contact the services and things to consider if you're thinking about self-referring please see website

Presentation by - Rebecca (Peer support team)
LPFT provide Children and Young People Mental Health and Emotional Wellbeing Services in Lincolnshire. The Services range from school based emotional wellbeing services (Healthy Minds Lincolnshire) for young people up to 19 years old (25 years if SEND or Leaving Care ) to more specialist mental health services (Child and Adolescent Mental Health Services - CAMHS).

LPFT CYP Services can be contacted directly for advise and young people and parent/carers can self-refer. For self-help advise and information on how to contact the services and things to consider if you're thinking about self-referring please see website

Presentation by - Belinda & Ella ( Mental Health Support Teams)
LPFT provide Children and Young People Mental Health and Emotional Wellbeing Services in Lincolnshire. The Services range from school based emotional wellbeing services (Healthy Minds Lincolnshire) for young people up to 19 years old (25 years if SEND or Leaving Care ) to more specialist mental health services (Child and Adolescent Mental Health Services - CAMHS).

LPFT CYP Services can be contacted directly for advise and young people and parent/carers can self-refer. For self-help advise and information on how to contact the services and things to consider if you're thinking about self-referring please see website

Presentation by - Alicen
We are the leading charity for deaf children. If your child has mild, moderate, severe or profound hearing loss, we’re here for you. We also support children with temporary hearing loss, such as glue ear.
We provide a wealth of information and guidance for parents and carers of deaf children and young people covering these areas and more:

Childhood deafness explained

Technology options

Communication choices

Education support

Benefits and rights

Building young people’s pride in their deaf identity

Developing young people’s confidence in asking for support
We also offer a welcoming community of families, giving parents and carers the opportunity to connect through online events, to meet families nearby and to access the real life experience of other parents and carers.
Why not call our Helpline as a first step.

  Email:- ndcs@ndcs.org.uk   Tel:- 0808 800 8880   Web:- www.ndcs.org.uk

Presentation by - Shaun
Wheels for All is an fantastic scheme, that create opportunities for disabled people and people who would otherwise not be able to cycle, through providing fun and friendly sessions.
Their specially adapt fleet of bikes are suitable for all, and are proud to be able to say they are one of the first accredited site in the East Midlands.

Presentation by - Chris
For a while now LPCF have been involved with Lincolnshire County Council (LCC) and the SEND alliance in developing access to core induction skills and knowledge modules of learning for Special School and Mainstream staff.
This was through involvement alongside partners in the 5 year Special School strategy.
During the process LPCF suggested that the training provided should not be restricted to staff but should also be made available to parents as part of the E-Learning process.
The SEND alliance have had the foresight, in the spirit of co-production, to accept this and approve parents access to complete the seven modules available:-
What is Inclusion?
What is Inclusion? (Bonus Content).
Respecting Individuals.
Awareness of Neuro-Typical Child.
SEND Code of Practice.
Working with Professionals.
Types of SEND.
To access the training parents need to be members of LPCF.