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Lincolnshire Parent Carer Forum
Lincolnshire Parent Carer Forum
admin@lincspcf.org.uk Tel 07925 232466  LPCF, PO Box 1183, Spalding, PE11 9EE
Registered Charity No. 1141060 * ICO Registration Z1810966

LPCF Consultations

Mencap’s Big Learning Disability Survey

Closes 31 July 2019

Mencap’s Big Learning Disability Survey closes at the end of July!
This is the last chance for people with a learning disability to take part in Mencap’s national survey. We would really appreciate it if you could share this with the people you support.

Take part here: Link Icon

For more information, Easy Read FAQs, supporter guidelines and the Welsh language version of the survey, please visit: Link Icon

Photo InsertedThe survey is the chance for people with a learning disability to share their experiences.
It was fully co-produced by people with a learning disability, and asks questions on topics they say are important to them, including health, relationships, employment and inclusion.

Mencap hopes that the findings will be useful across the sector, to fill in our knowledge gaps and help provide better support to people with a learning disability.

If you have any questions please email the Research team: research@mencap.org.uk

Early Years

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Early Parental Observations Survey

We are carrying out a survey to understand when parents and carers start to develop concerns about their child’s development and what those concerns are.

We want to survey UK-based parents and carers who have a child with a diagnosis of Cerebral Palsy. You may be more familiar with terms such as Monoplegia, Hemiplegia, Diplegia, Triplegia, Tetraplegia, Quadriplegia, Pentaplegia and Dystonic Cerebral Palsy, all of which are forms of Cerebral Palsy. If your child is now an adult you may also take part.

In the survey you will be asked to give details about;

The relationship you have to the child you are basing your answers on -

* The child’s current age and diagnosis
* The child’s age at diagnosis and at referral
* The earliest observations you, or others, made about the child that caused you concern
* Who you first spoke to about your concerns
* How your first concerns were handled by health care professionals
* Your experiences of going to see health care professionals to discuss your concerns
* Your own information, such as your age and ethnicity

Your responses will go towards developing a new screening tool. The new screening tool aims to reduce the age children get access to appropriate care by taking in to account the early concerns parents and carers have. Link Icon

Open until 30 Sept 19

Unfortunately, participating in this survey will not directly benefit yourself or your child. However, your responses may help other families in the future.

If you are interested in learning more about this research survey and/or participating please click next and you will be taken to the information sheet about the survey. The information sheet will give you further information about the survey and what we will do with your responses. The information sheet will take around 5 minutes to read and the survey will take around 10 minutes to complete. If you are not interested, I would like to thank you for your time.

With thanks - Jess Baggaley, PhD Student, Newcastle University, J.Baggaley2@newcastle.ac.uk

SEND funding call for evidence

In December 2018 the Secretary of State announced our intention to hold a call for evidence on the current funding arrangements for those with special educational needs, those with disabilities, and those who require alternative provision.
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This call for evidence is intended to help us understand how the current available funding is distributed, and what improvements to the financial arrangements could be made in future. We are also aware of the wider concerns about the overall amount of funding and the pressures on their budgets that many are reporting: we are separately looking carefully at this ahead of the next government Spending Review.Link Icon

Open until 31 July 2019.

On Friday 3 May, the Secretary of State for Education spoke at NAHT’s annual conference. The Secretary of State's speech reiterated the importance of mainstream schools meeting pupils’ special educational needs, but acknowledged the resource pressures:

• “There is one area of funding that I want to directly address now – the support that we give for children with special educational needs and disabilities… This isn’t some distraction from teaching. This is teaching. Helping vulnerable children learn is at the centre of the moral purpose that brought you into the profession… Supporting these children in mainstream schools where possible and where it is right for that child, is the right thing to do, as is increasing the amount of personalised support available in all settings to help them achieve great outcomes. But it is creating budgetary pressures….
• That means that this year we have invested over £6 billion in education for children with complex SEND. But I’m under no illusion - this may not be enough. This is a growing, complex issue, and I want to work with you to solve it. Part of that is of course about funding. And it’s also about changing needs. When I’ve spoken to teachers recently, they’ve told me that it’s not just the volume of support that has gone up. It’s also that the needs that vulnerable young people have – and the support that they require – is changing. This too is increasing pressures. So I need your front-line expertise – to properly understand what is driving these pressures, where the funding system is working, and where it is not.
• That’s why today I’m announcing a call for evidence, to gather your views and make sure everyone can input. I know schools and teachers can’t do this alone, which is why I’m encouraging others who have a crucial role supporting these vulnerable children, including local authorities and health services, to join the conversation too. This evidence is important. We need a system that works for these young people. And we should be unequivocal – that our ambition for them is exactly the same as our ambition for every other child. That they achieve their full potential.”