There are a numbers of agencies and organisations seeking feedback and views of parent carers.
Below we have listed selected consultations which parent carers may wish to consider offering their views to.

Outcome Measures in Child and Youth Mental Health Services: your views.



Are you a child or young person who has been seen in a children or youth mental health service? These services are also sometimes called child and adolescent mental health services *


Are you a parent or a carer of a child or young person who has been seen by child or youth mental health services?


Are you someone who works in child or youth mental health services?


We want to know your views on the use of outcome measures in these services.


Outcome measures are questionnaires filled in by children, young people, their parents or carers, or professionals that measure change in difficulties.

Questionnaires are not perfect ways to measure change, but they make sure that children, young people and their families can see how they are progressing and can help services be more effective.


NHS England asked the Child Outcomes Research Consortium (CORC) to find out which measures people are using and which they find useful.


We will use your answers to help the NHS ensure it has the best measures in place.


This survey closes September 7th.


This should take less than 6 minutes to complete. All information is anonymous. LINK


*By CAMHS we mean any service that seeks to help children and young people who have difficulties with their emotional or behavioural wellbeing however it is provided, e.g. a school, college or other educational setting, in an NHS setting, in a charity setting, or by an independent provider.

Research Study into Transition from Primary to Secondary this Summer


We are conducting an interesting  research project looking at good practise in transition from Primary to Secondary Schools for children with neurodevelopment disorders.  We are specifically looking at children with a diagnosis of ASD, Down Syndrome or William Syndrome.  


It is funded by a special needs charity and is a collaboration with Kingston University and Roehampton University. Both the principle investigators Dr Jo Van Herwegen and Dr Olympia Palikara are well experienced in neurodevelopmental conditions and have made significant contributions to the field.


We are asking the views of parents, children and SENCos or equivalent via an on-line questionnaire.  

We collate this information to understand more about good practise in transition for these groups and will use it to help develop systematic guidelines that can be used to share this good practise amongst schools and improve the EHC plan.  

It the long term this could lead to better funding for this group.


If you have any questions I would be happy to answer them. Your contribution to this research would be truly valued and appreciated. 

Here is a link to Info published online:


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