My name is Carol and I am a Grandma of a child with Cerebral Palsy. I joined the LPCF last in 2012 as they help to support families of children with disabilities around Lincolnshire.
I help them by giving practical help at their Parent Workshops and Cinema shows and help to sustain them through fundraising by joining their lottery club.
I love being part of their group and have learnt a lot about being part of a family with extra challenges.
I have 20 year old twins; one with Cerebral Palsy (CP).
From November 2007 to 2016 I have served as Vice Chair of LPCF before taking up the chairs position.
Best known for drinking coffee (hosting the coffee mornings!)
The best bit about LPCF for me is supporting parents, giving them lots of information and organising events for them to gain as much information as possible. This relates to the fact that when Emma was diagnosed I was given little information about CP and I became a regular at the library, reading anything and everything I could!!
My pet hate - for me it has to be meetings that don't achieve an outcome.
My strengths -organisational skills
My weaknesses -lack of confidence
What the LPCF has given me? More confidence in my own abilities, feeling of belonging and that I am not alone, helpful strategies through the parents’ workshops and lots of useful information!
What I have learnt along the way – it’s useful to have a sense of humour and be able to laugh at yourself and believe you me, I have had plenty of opportunity!!
As a retired Children's Services worker of 30 years I initially came across LPCF by providing their Website and DataBase management, although I was aware of their existence previously.
In my past life I worked within Youth Centres and Careers Centres and was always on a mission to address Discrimination and Equality, especially having experienced its impact on people within my life.
At 15 my stepson was suddenly, diagnosed with Type 1 Diabetes and it was a game changer for all concerned.
There were positives to report, and the school was excellent as are his current employers but the effects of such a change were, at times challenging, as all around had to adapt, change and learn
Moving on to the present I now have a partner with a child with CP whom I enjoy and treasure. A genuine hidden gem ! !
But in becoming involved with my partner, my understanding of Disability and the snowdrift of bureaucratic tape which one has to navigate came more to light.
Quite definitely, my eyes were stretched wide open by the challenges, even more as I came to realise the enormity of raising disabled youngsters even in tot their adulthood.
The main difficulties of raising a child with disabilities, in my view, are often not the disability, they are the hurdles and hoops parents have to overcome to get even the most basic movement from providers and the lack of co-ordination between services run by professionals
And so it was I have chosen to volunteer to assist and help Parent Carers.
If I have one appeal to these who read it is that LPCF's funding is partially based upon its membership numbers so PLEASE EVERYONE,
make sure you get people registered AND make sure you update your details every 2- 3years
I am a very proud mum of 2 wonderful boys.
My oldest son has ADHD and Aspergers, and my youngest has had a recent diagnosis of Dyslexia.
I have attended my local LPCF coffee mornings for a number of years. Initially it was because I was desperate for help, advice and support for my oldest son with his health care and more specifically education needs.
There I met other parents with their own difficult stories, issues and concerns. But also facing similar battles like mine.
LPCF gave me the knowledge and confidence through these coffee mornings and parent workshops to get the best help and support for my boys - and that felt great!
So, I have decided to become a volunteer, to help out where I can, to provide support and information for families who are facing struggles like mine, and its a great feeling to give something back.
Me, I'm am a parent carer of 3 children, 1 who has severe learning difficulties and complex needs including autism, ADHD, sensory processing difficulties and some medical problems. He attends a special school in Louth.
I volunteered with Lincolnshire Parent Carer Forum in the beginning and found a group of friendly, caring people who provided support, but who could also offer information and signpost to other organisations if necessary.
It can be very lonely at times being a parent/carer of a child with special educational needs or disabilities and it can really help knowing there is someone you can turn to. I have remained in contact even though I've been unable to volunteer for a number of years.
I now feel in a good position to volunteer again and want to share the knowledge I have gained of health, education and social care with other parent/carer. I want to give something back by offering support and being there for others.
I am a parent/carer of 3 children; my 2 boys have been diagnosed with autism, ADHD, Tourette's syndrome.
Life has been a battle with education, health and social care.
I had done my research and needed answers, that's when I found LPCC now known as LPCF.
When I attended the coffee mornings and expressed my concerns.
Finally there was someone who actually listened to and signposted to areas that I needed.
It was a great feeling to share my exhausted life style, and this made me feel I was not alone when talking to other parents in the same situation.
And so it is that I decided that the volunteers at LPCF do a fantastic job of helping families and I offered to help where ever I can, so that I too can help parents that have/are having a battle to get support where it is needed. Michelle.
We are parents to two beautiful children, Charles 13 and Natasha 11.
After researching on the internet support groups for children with special needs, we came across the Lincolnshire Parent Carer Forum.
William visited the next coffee morning in Louth and was pleased to meet a group of like minded parents in a relaxed atmosphere over coffee. Our main interest in the forum at the time was people's own experiences of getting a statement and transition from primary to secondary school.
Since then, we have attended some very useful and informative workshops about the changes to the SEN system due to take place in September 2014.
As parents, we have made new friends, who understand and have similar experiences to ourselves, we have become much more informed and confident in what the future holds for our children as a result of being part of the Lincolnshire Parent Carer Forum and as a result now want to help and support other parents who join the forum through our coffee morning in Louth.
The forum is a valuable voluntary group which provides a vital link for parents who at times may feel isolated and not listened to.
Come and say 'hello' at our next coffee morning in Louth, we would love to see you.
William & Michelle
My name is Pat , I am married and we have two grown up` children` and are grandparents to two girls.
I have joined the forum to give a bit of help when required.
Previously I was a home hairdresser for 45 years and have seen first hand the problems and obstacles that parents have to overcome with anyone with a disability, plus we have had some of our own issues regarding diagnosis etc, and at times this has been a struggle to find the right help.
So I thought - if I can give a little back and help (even if its only the washing up) I am available.
Originally I went to one of the LPCF coffee mornings when my youngest child went to primary school and offered to do some voluntary work for the group.
I now attend many meetings, meet with Service Providers, Local Authority, Workshops, large events and I am still learning new things, as well as helping other Parent/Carers by letting them know what information/support is out there for them.
Currently I support 2 coffee mornings and meet many like minded people.
My background was in Community nursing.
I am a mum of 3 girls and the eldest is a young adult with Severe Learning Difficulties, complex needs and GDD and after 11 years of asking was diagnosed with ASD.
My child has the mental age of a 5/6 year old, inside a young adult body which presents many challenging problems now and in the future.
Hi I'm Sarah
I have two girls Chloe and Emma who are both now adults. One of the reasons I wanted to become a Trustee of this wonderful group is because of the support they offered me over the years as one of my children has a genetic disorder.
Also, I wanted to offer my experience as an Early Years Teacher especially with my skills and knowledge relating to the challenges faced by children and their families.
The social side of LPCF is something I love, getting the opportunity to chat with like minded people and not forgetting the delicious cakes that are always on offer from the marvellous Carol.
I have worked with carers previously so whilst not being a carer myself
I feel I have some understanding of the issues faced by parents.
I have also worked with young people for 25 years..
I also have a background in group development and fundraising so will be able to support the charity behind the scenes.