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Team Profiles

 

 

  • Barry
  • Carol
  • Coralie
  • Kate
  • Michelle
  • Michelle and William
  • Rachel

Barry Emms

 

 

 

Hello, I’m Barry and I am married with two children, although they tell me that they are now classed as adults?

 

LPCF helped my wife and I when we first moved into the Lincolnshire area without really knowing who they were.

 

By receiving monthly news letters and the odd free tickets to Rand Farm they gave me the courage and conviction to challenge decisions that never seemed fair and cope with the stresses of parenthood with a child that required Educational Needs.

 

Now they are grown up I am volunteering my own time to ‘pay back’ the help they provided my family.

 

 

 

Committee Carol

 

 

My name is Carol and I am a Grandma of a child with Cerebral Palsy. I joined the LPCF last in 2012 as they help to support families of children with disabilities around Lincolnshire.

 

I help them by giving practical help at their Parent Workshops and Cinema shows and help to sustain them through fundraising by joining their lottery  club.

 

I love being part of their group and have learnt a lot about being part of a family with extra challenges.

 

Coralie

 

I  have 20 year old twins; one with Cerebral Palsy (CP).

From November 2007 to 2016 I have served as Vice Chair of LPCF before taking up the chairs position.

Best known for drinking coffee (hosting the coffee mornings!)

 

The best bit about LPCF for me is supporting parents, giving them lots of information and organising events for them to gain as much information as possible. This relates to the fact that when Emma was diagnosed I was given little information about CP and I became a regular at the library, reading anything and everything I could!!

 

My pet hate - for me it has to be meetings that don't achieve an outcome.

My strengths -organisational skills

My weaknesses -lack of confidence

 

What the LPCF has given me?  More confidence in my own abilities, feeling of belonging and that I am not alone, helpful strategies through the parents’ workshops and lots of useful information!

 

What I have learnt along the way – it’s   useful to have a sense of humour and be able to laugh at yourself and believe you me, I have had plenty of opportunity!!

 

Committee Memember Kate

 

I am a very proud mum of 2 wonderful boys.

 

My oldest son has ADHD and Aspergers,  and my youngest has had a recent diagnosis of Dyslexia. 

 

I have attended my local LPCF coffee mornings for a number of years. Initially it was because I was desperate for help, advice and support for my oldest son with his health care and more specifically education needs.

 

There I met other parents with their own difficult stories, issues and concerns. But also facing similar battles like mine.

LPCF gave me the knowledge and confidence through these coffee mornings and parent workshops to get the best  help and support for my boys - and that felt great!

 

So, I have decided to become a volunteer, to help out where I can, to provide support and information for families who are facing struggles like mine, and its a great feeling to give something back. 

Jason

 

 

I am a parent/carer of 3 children; my 2 boys have been diagnosed with autism, ADHD, Tourette's syndrome.

 

Life has been a battle with education, health and social care.

I had done my research and needed answers, that's when I found LPCC now known as LPCF.

 

When I attended the coffee mornings and expressed my concerns.

Finally there was someone who actually listened to and signposted to areas that I needed.

It was a great feeling to share my exhausted life style, and this made me feel I was not alone when talking to other parents in the same situation.

 

And so it is that I decided that the volunteers at LPCF do a fantastic job of helping families and I offered to help where ever I can, so that I too can help parents that have/are having a battle to get support where it is needed. Michelle.

 

 

Jason

 

We are parents to two beautiful children, Charles 13 and Natasha 11.

After researching on the internet support groups for children with special needs, we came across the Lincolnshire Parent Carer Forum.

 

William visited the next coffee morning in Louth and was pleased to meet a group of like minded parents in a relaxed atmosphere over coffee. Our main interest in the forum at the time was people's own experiences of getting a statement and transition from primary to secondary school.

 

Since then, we have attended some very useful and informative workshops about the changes to the SEN system due to take place in September 2014.

As parents, we have made new friends, who understand and have similar experiences to ourselves, we have become much more informed and confident in what the future holds for our children as a result of being part of the Lincolnshire Parent Carer Forum and as a result now want to help and support other parents who join the forum through our coffee morning in Louth.

 

The forum is a valuable voluntary group which provides a vital link for parents who at times may feel isolated and not listened to.

 

Come and say 'hello' at our next coffee morning in Louth, we would love to see you.

William & Michelle

Rachel

 

Originally I went to one of the LPCF coffee mornings once the youngest went t(to) primary school and offered to do some voluntary work for the group.

I now attend many meetings, meet with Service Providers, Local Authority Workshops, large events and I am still learning new things as well as helping other Parent/Carers what information/support is out there for them.

 

Currently I support 2 coffee mornings and help with the very "professional" mobile cinema and meeting many like minded people. My background was in Community nursing.

I am a mum of 3 girls and the eldest who is 15 has officially been diagnosed under the umbrella of Severe Learning Difficulties, after 11 years of asking for a formal diagnosis.

 

On self learnt experience we know she has Global delay, Language and Speech delay, ASD traits ,Sensory deficit, Asthma and Complex needs. She needs constant supervision in all aspects of daily living ; help getting her to places and appointments as her chronological age is 15 but her mental age is that of a 4/6 year old inside a 15 year old's body which presents some challenging problems.

 

We have been one of the lucky families with getting help and support from Pre- school to Primary school to a Secondary special school with a brilliant one to one TA; until secondary school when the TA went to further her career. We have had our moments with Health but as she gets older and heads towards adulthood we know there will be difficulties and have started to plan for her future.

 

 

 

 

 

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